Brief Report: Challenges in Obtaining the Informed Perspectives of Stakeholders Regarding HIV Molecular Epidemiology.
Brief Report: Challenges in Obtaining the Informed Perspectives of Stakeholders Regarding HIV Molecular Epidemiology.
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简要报告：获取利益相关者有关艾滋病毒分子流行病学的知情观点的挑战。
DOI：
10.1097/qai.0000000000003179
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发表时间：
2023
期刊：
影响因子：
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通讯作者：
Sugarman,Jeremy
中科院分区：
文献类型：
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作者：
Bollinger,JuliM;Geller,Gail;May,Elizabeth;Brewer,Janesse;Henry,LeslieMeltzer;Sugarman,Jeremy
背景：HIV分子流行病学（HIV-ME）目前正以多种方式使用，包括分子HIV监测，以帮助识别和应对美国终止HIV流行病倡议中规定的新出现的HIV传播集群。然而，HIV-ME在一般情况下，其用于集群检测和响应，特别是提出了重大的伦理和社会问题，这引发了激烈的辩论。然而，有一个缺乏的信息，这些潜在的好处和关注是如何被认为在艾滋病毒感染者和没有艾滋病毒的人在一个增加的risk.Setting：虚拟参与与美国participants.Methods：我们严格开发了一个简短的信息视频艾滋病毒-ME和进行了一系列的深入访谈与艾滋病毒感染者和没有艾滋病毒的人在一个增加的risk.Results：通过广泛的利益相关者参与在视频开发过程中，随后的深入访谈（N= 24），几个初步的调查结果浮出水面。相反的高度关注的一些批评HIV-ME，我们的数据似乎表现出广泛的支持it. Also，我们观察到混淆的观点对HIV-ME关注艾滋病毒公共卫生surveillance.Conclusion：我们的经验揭示了大量的沟通挑战有关的性质，需要克服，以确保它是正确的理解，这是必要的有意义的参与利益相关者在讨论其使用。此外，持续的、反应迅速的参与努力至关重要。需要更多的系统数据来帮助告知有关HIV-ME的政策制定和实践。
Background:HIV molecular epidemiology (HIV-ME) is now being used in a variety of ways, including molecular HIV surveillance to help identify and respond to emerging HIV transmission clusters as specified in the Ending the HIV Epidemic in the US initiative. However, HIV-ME in general, and its use for cluster detection and response, in particular, raises significant ethical and social concerns, which have spurred vigorous debates. Nevertheless, there is a paucity of information regarding how these potential benefits and concerns are perceived among people living with HIV and people without HIV at an increased risk.Setting:Virtual engagement with US participants.Methods:We rigorously developed a brief informational video about HIV-ME and conducted a series of in-depth interviews with people living with HIV and people without HIV at an increased risk.Results:Through extensive stakeholder engagement during the video development process and subsequent in-depth interviews (N= 24), several preliminary findings surfaced. In contrast to the high level of concern raised by some critics of HIV-ME, our data appear to show broad support for it. In addition, we observed conflation of perspectives about HIV-ME with concerns about HIV public health surveillance more generally.Conclusion:Our experiences reveal substantial communication challenges related to the nature of HIV-ME that need to be overcome to ensure that it is properly understood, which is necessary for meaningfully engaging stakeholders in discussions about its use. Moreover, ongoing, responsive, engagement efforts are critical. Additional systematic data are needed to help inform policy making and practice regarding HIV-ME.