Protecting posted genes: social networking and the limits of GINA.
Protecting posted genes: social networking and the limits of GINA.
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保护发布的基因：社交网络和 GINA 的局限性。
DOI：
10.1080/15265161.2014.957417
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发表时间：
2014
期刊：
影响因子：
--
通讯作者：
Borgelt,Emily
中科院分区：
文献类型：
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作者：
Soo-JinLee,Sandra;Borgelt,Emily
基因分型成本的降低和社交媒体的大量使用正在推动个人基因检测行业的发展，消费者在网上购买基因风险信息并与之互动。2008年联邦《基因信息非歧视法》（GINA）在某些方面保护消费者及其基因风险状况，该法禁止雇主和医疗保险公司歧视性地使用基因信息;然而，鉴于在线社交网络的日常做法及其对工作场所的影响，实际和技术上的限制削弱了其可识别性。在Web 2.0时代，大多数州的雇主都可以合法地在网上搜索求职者和员工，在社交网站上搜索可能影响招聘和就业决策的个人信息。我们研究GINA的在线共享遗传信息的保护，以及它的局限性，并提出政策建议，以解决目前的差距，让员工的遗传信息在基于网络的世界脆弱。
The combination of decreased genotyping costs and prolific social media use is fueling a personal genetic testing industry in which consumers purchase and interact with genetic risk information online. Consumers and their genetic risk profiles are protected in some respects by the 2008 federal Genetic Information Nondiscrimination Act (GINA), which forbids the discriminatory use of genetic information by employers and health insurers; however, practical and technical limitations undermine its enforceability, given the everyday practices of online social networking and its impact on the workplace. In the Web 2.0 era, employers in most states can legally search about job candidates and employees online, probing social networking sites for personal information that might bear on hiring and employment decisions. We examine GINA's protections for online sharing of genetic information as well as its limitations, and propose policy recommendations to address current gaps that leave employees’ genetic information vulnerable in a Web-based world.