The Experience of Stigma in Chronic Obstructive Pulmonary Disease
The Experience of Stigma in Chronic Obstructive Pulmonary Disease
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DOI：
10.1177/0193945910384602
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发表时间：
2011-11-01
影响因子：
1.8
通讯作者：
Larson, Janet L.
中科院分区：
文献类型：
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作者：
Berger, Barbara E.;Kapella, Mary C.;Larson, Janet L.
慢性阻塞性肺疾病(COPD)患者可能会经历严重的呼吸困难、顽固的分泌物和破坏性的咳嗽。他们经常在日常活动中苦苦挣扎，随着时间的推移，他们花在户外的时间往往会减少。仅用生理变化不能充分解释伴随这些变化而来的功能衰退。这项描述性的定性研究从中度到重度COPD患者的角度描述了社会变化和耻辱的经历。共有16名参与者(11名男性，5名女性)参加了关于慢性阻塞性肺病对社会关系的影响和与慢性阻塞性肺病相关的耻辱经历的个人访谈。参与者意识到与慢性阻塞性肺病相关的污名的可能性。新出现的主题包括与吸烟有关的指责的盛行，既来自其他人，包括医疗保健提供者，也来自他们自己。虽然社会活动的许多减少似乎是对功能限制的务实适应，但这些决定也可能是为了避免潜在的污名化情况。
People with chronic obstructive pulmonary disease (COPD) can experience severe dyspnea, tenacious secretions, and a disruptive cough. They often struggle with daily activities and over time tend to decrease the amount of time they spend outside the home. The functional decline accompanying these changes is not adequately explained by physical changes alone. This descriptive, qualitative study describes social changes and experiences of stigma from the perspective of people with moderate to severe COPD. A total of 16 participants (11 men, 5 women) participated in individual interviews regarding effects of COPD on social relationships and experiences with COPD-related stigma. Participants were aware of the potential for stigma related to COPD. Emerging themes included the prevalence of blame related to smoking, both from others, including health care providers, and from themselves. Although many decreases in social activities appear to be pragmatic adaptations to functional limitations, these decisions may also be attempts to avoid potentially stigmatizing situations.