Struggling for motherhood with an intellectual disability-A qualitative study of women's experiences in Sweden
Struggling for motherhood with an intellectual disability-A qualitative study of women's experiences in Sweden
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DOI：
10.1016/j.midw.2012.06.014
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发表时间：
2013-06-01
期刊：
影响因子：
2.7
通讯作者：
Larsson, Margareta
中科院分区：
文献类型：
--
作者：
Hoglund, Berit;Larsson, Margareta
目的：为了更深入地了解智障妇女的生育经历。设计/背景：对10名在7年内生育的智障妇女进行两次访谈，并对数据进行内容分析。结果：总体主题是：为智障妇女争取母亲地位。当智障妇女遇到伴侣和亲属的不同反应时，智障的意义变得明显，他们有时会建议人工流产。如果她们认为诊断对她们有益，她们就会透露自己的诊断结果。在整个过程中，妇女们也对孩子的监护权感到焦虑和痛苦。女性将怀孕视为一种生理和心理的转变。这在很大程度上是一件快乐而负责任的人生大事，这些妇女意识到了她们身体上的体征以及与未出生的孩子的接触。家长教育被认为很重要，但没有充分适应他们的需要。这些妇女将分娩描述为艰苦而痛苦的工作，有时很难理解，她们有不同的策略来应对分娩的痛苦和紧张。孩子受到了妇女们的热情和好奇心的欢迎，她们照顾和哺乳孩子，即使医院环境可能会混乱，继续监护权不是理所当然的。结论：患有ID的妇女挣扎着成为母亲，害怕失去对孩子的监护权。专业人士需要识别和支持这些女性，她们可能并不总是披露自己的诊断结果。由于怀孕、分娩和过渡到母亲的过程可能很难理解，信息和支持应该更好地适应他们的需求。(C)2012爱思唯尔有限公司。保留所有权利。
Objective: to gain a deeper understanding of the experiences of childbearing in women with intellectual disabililty (ID).Design/setting: ten women with ID, who had given birth within seven years, were interviewed twice and data were analysed with content analysis.Findings: the overarching theme was: Struggling for motherhood with an ID. The significance of having an intellectual disability became evident when the women encountered mixed reactions from partners and relatives, who sometimes suggested an induced abortion. The women disclosed their diagnosis if they believed it was beneficial for them. Throughout the process the women also felt anxious and distressed about the custody of the child. Women experienced the pregnancy as a physical and psychological transition. It was mostly a happy and responsible life event, and the women were aware of physical signs in their bodies and contact with the unborn child. Parent education was considered important but not adequately adapted to their needs. The women described the delivery as hard and painful work, sometimes difficult to understand and they had different strategies to handle the pain and strain of labour. The child was welcomed with warmth and curiosity by the women, who cared for and breast fed the child even if the hospital environment could be confusing and continued custody not taken for granted.Conclusions: women with ID struggle for motherhood and fear losing custody of the child. Professionals need to identify and support these women, who may not always disclose their diagnosis. Since pregnancy, delivery and the transition into motherhood can be difficult to understand, information and support should be better tailored to their needs. (C) 2012 Elsevier Ltd. All rights reserved.