Content analysis of health-related quality-of-life patient-reported outcome measures used in patients with atopic dermatitis.
Content analysis of health-related quality-of-life patient-reported outcome measures used in patients with atopic dermatitis.
复制标题
对特应性皮炎患者使用的与健康相关的生活质量患者报告的结果测量的内容分析。
DOI：
10.1016/j.jaad.2023.05.069
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发表时间：
2023
影响因子：
13.8
通讯作者：
Barbieri,JohnS
中科院分区：
文献类型：
--
作者：
Shields,Ali;Yoon,Jaewon;Barbieri,JohnS
尊敬的编辑，特应性皮炎 (AD) 会对患者的生活质量产生深远的影响。 1 31 名患者报告的结果测量 (PROM) 可以突出患有 AD 的成人和儿童的生活经历。 32 为了指导 PROM 的选择，本研究的目的是确定并概述 AD 中使用的现有 PROM 中包含的内容 33。协调湿疹结果措施 37 (HOME) 小组从之前的系统评价中确定了 3435 个常用的 PROM（英语），用于记录 36 AD 患者的健康相关生活质量。 1, 2 这些措施分为成人和儿童/婴儿措施。对于每个 PROM，对每个项目的 38 个内容和措辞（积极[例如，“我喜欢我的皮肤看起来的方式”]、消极[例如，“我不喜欢我皮肤的样子”]和中性）进行了评估。 39每个项目被分配了 3 个级别的编码 40（域、子域和健康概念）。 3 编码由 3 名研究人员（AS、JY、JSB）进行 41 分析由研究人员 AS 和 JY 独立完成，编码中的差异由第三位研究人员 JSB 解决 42 数据收集和分析是在 2022 年 8 月 43 至 2022 年 12 月期间使用 Microsoft Excel 进行的。 44
Dear Editor, Atopic Dermatitis (AD) can have a profound effect on patients’ quality of life. 1 Patient-31 reported outcome measures (PROMs) can highlight the lived experience of adults and children with AD. 32 To guide selection of PROMs, the objectives of this study were to identify and outline the content 33 included in existing PROMs used in AD. 3435 Commonly used PROMs (English language) capturing health-related quality of life among patients with 36 AD were identified from previous systematic reviews by the Harmonizing Outcome Measures for Eczema 37 (HOME) group. 1, 2 These were stratified into adult and children/infant measures. For each PROM, the 38 content of each item and the phrasing (positive [eg,“I like the way my skin looks”], negative [eg,“I don’t 39 like the way my skin looks”], and neutral) were evaluated. Each item was assigned 3 levels of coding 40 (domain, subdomain, and health concepts). 3 Coding was performed by 3 researchers (AS, JY, JSB) 41 Analysis was done independently by researchers AS and JY with discrepancies in coding being 42 resolved by a third researcher, JSB Data collection and analysis were performed between August 2022 43 and December 2022 using Microsoft Excel. 44