Health-related quality of life of children with Developmental Coordination Disorder

Health-related quality of life of children with Developmental Coordination Disorder
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DOI:
10.1016/j.ridd.2018.05.012
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发表时间:
2019-01-01
影响因子:
3.1
通讯作者:
Zwicker, Jill G.
Zwicker, Jill G.
中科院分区:
医学2区
文献类型:
--
作者:
Karras, Heather C.;Morin, Danita N.;Zwicker, Jill G.

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背景资料:虽然发展协调障碍(DCD)主要是一种运动障碍,但它也会影响患有这种疾病的儿童的情绪和心理社会功能。有证据表明,DCD儿童的生活质量低于同龄儿童,但很少有研究明确探讨这类儿童的健康相关生活质量(HRQOL)。方法:采用KidScreen-52和力量与困难问卷对50例DCD患儿进行调查,平均年龄(SD)9.8岁结果:与已发表的常模相比,患有DCD的儿童及其父母的HRQOL显著降低。照顾者有一个显着较低的看法,他们的孩子的HRQOL比他们的孩子的自我报告在许多领域。患有DCD儿童的父母报告说,与正常儿童相比,他们的孩子经历了更多的情绪和行为障碍。运动功能差和注意力困难预测HRQOL.Conclusion和影响:DCD似乎有助于降低感知HRQOL。研究结果为患有先天性腹泻的儿童提供了除了运动技能干预之外的治疗目标。
Background: Although Developmental Coordination Disorder (DCD) is primarily a motor disorder, it can also impact emotional and psychosocial functioning of children with this condition. Evidence suggests that children with DCD experience lower quality of life than their peers, but few studies have explicitly examined the health-related quality of life (HRQOL) of these children.Aims: To: (1) describe HRQOL of children with DCD compared to typically-developing children; (2) compare HRQOL from the perspectives of children with DCD and their parents; and (3) explore predictors of HRQOL for children with DCD.Methods: Data from the KidScreen-52 and Strength and Difficulties Questionnaire were collected from 50 children with DCD [Mean(SD) age: 9.8 (1.2) years] and their parents and compared to normative data.Results: Children with DCD and their parents report significantly lower HRQOL compared to published norms. Caregivers have a significantly lower perception of their child's HRQOL than their child's self-report in many domains. Parents of children with DCD report that their children experience significantly more emotional and behavioral disturbances compared to norms. Poor motor function and attentional difficulties predict HRQOL.Conclusion and implications: DCD appears to contribute to lower perceived HRQOL. Findings inform therapeutic targets for children with DCD, beyond motor skill intervention.