Practical matters, rather than lack of trust, motivate non-participation in a long-term cohort trial
Practical matters, rather than lack of trust, motivate non-participation in a long-term cohort trial
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DOI：
10.1111/j.1399-5448.2008.00498.x
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发表时间：
2009-09-01
影响因子：
3.4
通讯作者：
Swartling, Ulrica
中科院分区：
文献类型：
--
作者：
Helgesson, Gert;Hansson, Mats G.;Swartling, Ulrica
目的：本研究的目的是调查参与父母、前参与者和非参与者参与或不参与儿童糖尿病预测和发展的纵向队列研究的重要性以及其他原因。研究设计：针对每个群体的问卷调查，受访者对一组列出的参与/不参与原因的重要性进行了评分，结果：对大多数决定不参加ABIS研究或后来决定退出的受访者来说，缺乏信任不是一个核心因素。对更多的人来说，实际问题，如采血和缺乏时间，是重要的因素。然而，五分之四仍参与ABIS研究的人表示，对研究人员的信任是他们最初决定参与的重要因素。对研究人员的信任可能是人们愿意参与研究的必要前提，但实际问题，如采血所需的时间或采血时的痛苦，比缺乏信任更重要。解释与ABIS研究有关的选择退出。
Objective: The objective of this study was to investigate the importance of trust in researchers and other reasons that participating parents, former participants, and non-participants had for participating, or not participating, in a longitudinal cohort study on prediction and development of diabetes in children.Study design: A questionnaire addressing each of these groups, where respondents graded the importance of a set of listed reasons for participating/not participating, was randomly distributed to 2500 families in the All Babies in Southeast Sweden (ABIS) Study region with children born between 1997 and 1999.Results: Lack of trust was not a central Factor to a great majority of respondents who decided not to participate in the ABIS study or who later decided to opt out. Practical matters, like blood sampling and lack of time, were important factors to many more. Yet, four fifths of those who still participate in the ABIS study stated trust in the researchers to be an important factor to their initial decision to participate.Conclusions: Trust in researchers may be a necessary prerequisite in order for people to be willing to participate in research, but practical matters such as time that has to be spent or pain involved in collecting blood were more important factors than lack of trust in explaining opt Out in relation to the ABIS study.