How much should we expect? Family caregiving of AIDS patients in rural Uganda

How much should we expect? Family caregiving of AIDS patients in rural Uganda
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DOI:
10.1177/1043659607305192
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发表时间:
2007-10-01
影响因子:
2.1
通讯作者:
Rubaale, Tom
Rubaale, Tom
中科院分区:
医学4区
文献类型:
--
作者:
Kipp, Walter;Tindyebwa, Denis;Rubaale, Tom

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本研究旨在探讨爱滋病患者家庭照顾者的照顾负担。本研究采横断面探索性设计,探讨爱滋病照护者家庭照顾者的照护经验。问卷调查被用来采访120名家庭照顾者的艾滋病患者从乌干达西部的四个农村地区。所提问题涉及家庭生计的12个领域。计算照顾者的照顾负担评分。结果发现,照顾负担得分高,在所有领域,除了那些关于家庭内的关系和药物滥用。据报告,工作量严重超负荷,健康状况差。养育子女的沉重负担使家庭照顾者面临健康状况下降、社会孤立和抑郁增加的风险。
The aim of this study was to measure the burden of care for family caregivers of AIDS patients. A cross-sectional exploratory design was used to describe the care experiences of family caregivers of AIDS care recipients. A questionnaire was used to interview 120 family caregivers of AIDS patients from four rural areas in western Uganda. The questions asked were related to 12 domains of family caregiving. Care burden scores of caregivers were calculated. It was found that care burden scores were high in all domains except those regarding relationships within the families and substance abuse. Serious work overload and low health status were reported. The high burden of caregiving puts family caregivers at risk for decreased health status and increased social isolation and depression.