CF RISE: Implementing a Clinic-Based Transition Program
CF RISE: Implementing a Clinic-Based Transition Program
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DOI：
10.1089/ped.2015.0594
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发表时间：
2015-12-01
影响因子：
0.9
通讯作者：
Eakin, Michelle N.
中科院分区：
文献类型：
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作者：
Baker, Anna M.;Riekert, Kristin A.;Eakin, Michelle N.
在保健过渡期间，青少年应加强管理自己健康的责任。过渡服务与改善的结果有关；然而，许多患有慢性疾病的年轻人，如囊性纤维化（CF），并没有接受基于指南的过渡服务。个别CF中心有过渡项目，但没有具体的项目被广泛传播。一个过渡项目CF：责任、独立、自我照顾、教育CF RISE最近在10个CF中心开发并实施。我们基于实施研究综合框架（CFIR）对CF RISE实施进行了过程评估。来自10个站点的CF医疗保健提供者（23/25[95%]）在项目启动6个月后完成了一项关于其经历的在线调查。开放式调查问题被编码为解决执行领域的中心主题。提供者报告说，CF RISE促进了与家庭的沟通，特别是知识和技能评估。所有的供应商都认为该项目很有价值，60%的人认为该项目非常或非常有价值。时间是最大的实施障碍（96%），其次是访问计划（61%）。95%的人认为该项目可以成为诊所可持续发展的一部分，91%的人认为一年后他们有可能或完全有可能使用该项目。供应商也对该计划的灵活性表示赞赏。CF医疗保健提供者在其最初实施期间积极评价CF RISE。这些反馈提供了对可持续性和挑战的见解，这些是在制定更广泛的执行计划时必须考虑的。在过渡时期，评估诸如CF RISE等项目对结果的有效性至关重要。
During the period of healthcare transition, adolescents should increase responsibility for managing their health. Transition services are associated with improved outcomes; however, many youth with chronic conditions such as cystic fibrosis (CF) are not receiving guideline-based transition services. Individual CF centers have transition programs, yet no specific program is widely disseminated. A transition program CF: Responsibility, Independence, Self-care, Education CF RISE was recently developed and implemented at 10 CF centers. We conducted a process evaluation of CF RISE implementation based on the Consolidated Framework of Implementation Research (CFIR). CF healthcare providers (23/25 [95%]) from the 10 sites completed an online survey about their experiences 6 months after initiating the program. Open-ended survey questions were coded into central themes addressing domains of implementation. Providers reported that CF RISE facilitated communication with the family, particularly the knowledge and skills assessments. All providers rated the program as valuable with 60% finding the program very or extremely valuable. Time was the biggest implementation barrier (96%) followed by planning for the visit (61%). Ninety-five percent felt the program could become a sustainable part of the clinic, and 91% felt that it was somewhat or completely likely that they would be using the program 1 year from now. Providers also appreciated the flexibility of the program. CF healthcare providers positively evaluated CF RISE during its initial implementation period. The feedback provides insight into the sustainability and challenges that must be considered as wider implementation plans are developed. It is critical to evaluate the effectiveness of programs such as CF RISE on the outcomes during the transition period.