A cohort study of the impact of COVID-19 on the quality of life of people newly diagnosed with dementia and their family carers.
A cohort study of the impact of COVID-19 on the quality of life of people newly diagnosed with dementia and their family carers.
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DOI：
10.1002/trc2.12236
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发表时间：
2022
影响因子：
4.8
通讯作者：
Banerjee, Sube
中科院分区：
文献类型：
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作者：
Hicks, Ben;Read, Sanna;Hu, Bo;Wittenberg, Raphael;Grahamslaw, Amanda;Karim, Anomita;Martin, Evelyn;Nuzum, Eleanor;Reichental, Jacob;Russell, Alice;Siddle, Elaine;Storey, Bryony;Tipping, Eva;Baxter, Kate;Birks, Yvonne;Brayne, Carol;Brimblecombe, Nicola;Dangoor, Margaret;Dixon, Josie;Gridley, Kate;Harris, Peter R;Knapp, Martin;Miles, Eleanor;Perach, Rotem;Robinson, Louise;Rusted, Jennifer;Stewart, Rob;Thomas, Alan J;Banerjee, Sube
COVID-19影响了痴呆症患者及其家庭护理人员，但对整体生活质量的影响知之甚少。在英国的一项队列研究中，收集了114名护理人员和93名最近诊断为痴呆症的患者的流行前和流行后数据。潜在生长曲线模型检查生活质量的变化。照顾者报告生活质量显著下降，尽管痴呆症患者没有表现出任何变化。在多变量分析中，较高水平的认知障碍，剥夺，研究地点，以及较低数量的记忆诊所接触与照顾者的生活质量下降更大。在大流行期间维持痴呆症患者的生活质量似乎是以牺牲他们的家庭照顾者为代价的。这种不平等最严重的是那些照顾更严重的痴呆症患者的人，在贫困地区，记忆服务的支持最少。这些影响可以通过诊断后护理来预防或逆转。
COVID‐19 has impacted people with dementia and their family carers, yet little is known about effects on overall quality of life. In a UK cohort study, pre‐ and post‐pandemic data were collected from 114 carers and 93 recently diagnosed people with dementia. Latent growth curve modeling examined change in quality of life. Carers reported significant decline in quality of life, although no change was demonstrated by people with dementia. In multivariable analyses, higher levels of cognitive impairment, deprivation, study site, and lower number of memory clinic contacts were associated with greater decline in carer quality of life. Maintaining life quality for people with dementia during the pandemic appears to have come at the expense of their family carers. This inequity has fallen hardest on those caring for people with more severe dementia, in deprived areas, and with least support from memory services. These effects may be prevented or reversed by post‐diagnostic care.