Perceived intrafamily melanoma risk communication.
Perceived intrafamily melanoma risk communication.
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DOI：
10.1097/ncc.0b013e31819ae11c
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发表时间：
2009-05
期刊：
影响因子：
2.6
通讯作者：
Siaki LA
中科院分区：
文献类型：
--
作者：
Loescher LJ;Crist JD;Siaki LA
黑色素瘤是一种致命的皮肤癌。具有强烈黑色素瘤病史的家族成员具有黑色素瘤发生或复发的高风险。这些家庭成员的生存率提高可能受到他们对黑色素瘤风险的了解以及降低风险或在早期最可治愈阶段检测黑色素瘤的简单行为的影响。然而，在黑色素瘤高危家庭中，对风险或风险改变行为的沟通探索很少。在这项研究中，我们描述了黑色素瘤风险的家庭内沟通。使用定性描述的方法，我们研究了深入的访谈，有两个或两个以上的黑色素瘤病例的8个家庭的22名成员。我们确定了四个主要主题：（1）对风险的认识和理解，（2）家庭促进和阻碍沟通，（3）促进家庭中黑色素瘤的预防和检测，以及（4）告诉他人的义务。我们讨论了这些发现的背景下，在其他癌症的高风险的家庭中的癌症风险沟通，癌症风险沟通的障碍，在这种现象的知识，假设驱动的研究建议，以及适用于这些和其他高危家庭的临床意义的剩余差距。
Melanoma is a skin cancer that can be deadly. Members of families with a strong history of melanoma have a high risk of melanoma occurrence or recurrence. Enhanced survival in these family members could be influenced by their knowledge of melanoma risk and by simple behaviors to decrease their risk or detect melanoma in its early, most curable, stage. Yet, there is minimal exploration on communication of risk or risk-modifying behaviors in melanoma at-risk families. In this study we described perceived intra-family communication of melanoma risk. Using a qualitative descriptive approach, we examined in-depth interviews with 22 members of eight families having two or more cases of melanoma. We identified four major themes: (1) Awareness and understanding of risk, (2) Families facilitate and hinder communication, (3) Promoting melanoma prevention and detection in the family, and (4) An obligation to tell others. We discuss these findings in the context of extant knowledge of cancer risk communication in families at high risk for other cancers, impediments to cancer risk communication, remaining gaps in knowledge of this phenomenon, suggestions for hypothesis-driven research, and clinical implications that are applicable to these and other at-risk families.