Cardiac Networks United: an integrated paediatric and congenital cardiovascular research and improvement network
Cardiac Networks United: an integrated paediatric and congenital cardiovascular research and improvement network
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DOI：
10.1017/s1047951118001683
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发表时间：
2019-02-01
影响因子：
1
通讯作者：
Pearson, Gail
中科院分区：
文献类型：
--
作者：
Gaies, Michael;Anderson, Jeffrey;Pearson, Gail
优化儿童和CHD患者的短期和长期结局取决于持续的科学发现，并在多个利益相关者的协调努力下转化为临床改善。对于寻求该领域持续科学和临床进步的临床医生，研究人员，管理人员，患者和家庭来说，仍然存在一些挑战。我们描述了一个新的综合研究和改进网络-心脏网络联合，旨在建立的经验和取得的成功，以创建一个新的基础设施的研究和质量改进，将服务于未来的儿科和先天性心脏病社区的需求。现有的差距，数据集成和改进的障碍进行了描述，沿着与心脏网络联合的使命和愿景，组织结构和早期目标。最后，主要利益相关群体的代表，心脏中心的管理人员，研究领导者，学习卫生系统专家和家长的倡导者，提供他们的观点，需要这种新的合作努力。
Optimising short-and long-term outcomes for children and patients with CHD depends on continued scientific discovery and translation to clinical improvements in a coordinated effort by multiple stakeholders. Several challenges remain for clinicians, researchers, administrators, patients, and families seeking continuous scientific and clinical advancements in the field. We describe a new integrated research and improvement network-Cardiac Networks United that seeks to build upon the experience and success achieved to-date to create a new infrastructure for research and quality improvement that will serve the needs of the paediatric and congenital heart community in the future. Existing gaps in data integration and barriers to improvement are described, along with the mission and vision, organisational structure, and early objectives of Cardiac Networks United. Finally, representatives of key stakeholder groups-heart centre executives, research leaders, learning health system experts, and parent advocates - offer their perspectives on the need for this new collaborative effort.