Young Voices: Sexual Health and Transition Care Needs in Adolescents with Intersex/Differences of Sex Development-A Pilot Study
Young Voices: Sexual Health and Transition Care Needs in Adolescents with Intersex/Differences of Sex Development-A Pilot Study
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DOI：
10.1016/j.jpag.2020.11.001
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发表时间：
2021-03-23
影响因子：
1.8
通讯作者：
van de Grift, Tim C.
中科院分区：
文献类型：
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作者：
Callens, Nina;Kreukels, Baudewijntje P. C.;van de Grift, Tim C.
研究目的：为了确定当前几代具有中间性/性别发育差异（DSD）的青少年在从儿科向成人医疗保健过渡期间的性健康和幸福需求。设计：定性叙述分析，定量分析和问卷调查。设置：同伴支持网络和门诊诊所。参与者：18名年龄在16-21岁的中间性/DSD青少年。干预措施：半结构化访谈和/或survey.Main Outcome Measures：青年学习身体的差异，他们的性经验和动机（例如，机构，快乐），身体形象，性沟通内外的卫生保健，和当前和理想的过渡护理之间的差距。定量和定性的内容的调查和访谈进行了分析，以确定关键topics.Results：我们发现，（1）有必要开放的观念，医疗保健提供者的意思是有一个性别变异：（2）有必要继续支持和信息有关的诊断和治疗，以及经验方面的性生活的现实：结论：以使用者为中心的照顾观点，包括他们的故事和反馈，以改善服务的性别变异的青少年。这项试点研究表明，青少年希望更多地参与他们的性健康保健的方式，连接到他们的具体问题。他们对信息的渴望随着年龄的增长而增加，并强调了医疗保健提供者可以为患者带来关于他们身体的最重要的教训：如何照顾，尊重和享受他们。
Study Objective: To determine the sexual health and well-being needs of current generations of youth with intersex/Differences of Sex Development (DSD) during transition from pediatric to adult health care.Design: Qualitative narrative analyses, quantitative descriptives, and questionnaires.Setting: Peer support networks and outpatient clinics.Participants: Eighteen adolescents aged 16-21 years with intersex/DSD.Interventions: Semi-structured interviews and/or survey.Main Outcome Measures: Youths learning about bodily differences, their sexual experiences and motives (eg, agency, pleasure), body image, sexual communication inside and outside of health care, and perceived gaps between current and ideal transitional care. Quantitative and qualitative content of the surveys and interviews were analyzed to identify key topics.Results: We found that (1) there is a need for open-minded perceptions of health care providers about what it means to have a sex variation: (2) there is a need for continued support and information about lived realities relating to the diagnosis and treatments as well as experiential aspects of sexuality: and (3) there are communication obstacles with providers in a multidisciplinary team setting as well as with parents.Conclusion: A user-centered care perspective for adolescents with sex variations includes their stories and feedback toward service improvement. This pilot study shows that adolescents want to be more involved in their sexual health care in ways that connect to their specific questions. Their desire for information increases as they grow older, and underlines the most essential lesson that health care providers can bring their patients about their bodies: how to care for, respect, and enjoy them.