Impact of cognitive impairment on mild dementia patients and mild cognitive impairment patients and their informants
Impact of cognitive impairment on mild dementia patients and mild cognitive impairment patients and their informants
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DOI：
10.1017/s1041610205002450
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发表时间：
2006-03-01
影响因子：
7
通讯作者：
Bullock, Roger
中科院分区：
文献类型：
--
作者：
Frank, Lori;Lloyd, Andrew;Bullock, Roger
背景资料：本研究的目的是确定认知障碍的影响，轻度认知障碍（MCI）和轻度可能阿尔茨海默病（AD）和他们的线人的关键方面，并确定重叠和groups.Methods之间的差异：结构化焦点小组讨论进行了MCI患者，AD患者，MCI线人，AD线人。参与者是从英国的记忆诊所招募来的。共有20名AD和20名MCI患者以及16名AD和11名MCI知情人参加。会议内容审查，以确定认知障碍的主要影响;结果进行了比较，跨诊断组和患者和informants.Results：七个关键主题出现：诊断的不确定性，技能损失，社会和家庭角色的变化，尴尬和羞耻，情绪，洞察力和负担。患者能够讨论认知障碍对他们生活的影响，并报告了认识到的记忆问题，自信心下降，害怕尴尬，担心因认知障碍而改变家庭角色和焦虑的挫折感。举报人报告更多的症状和更多的损害比病人，并表示增加对他人的patients.Conclusion：MCI和轻度AD患者的生活和那些接近他们的生活带来了巨大的负担。
Background: The aim of this study was to identify key aspects of the impact of cognitive impairment on patients with mild cognitive impairment (MCI) and mild probable Alzheimer disease (AD) and their informants, and identify overlap and differences between the groups.Methods: Structured focus group discussions were conducted with MCI patients, AD patients, MCI informants, and AD informants. Participants were recruited from memory clinics in the U.K. and the U.S.A. A total of 20 AD and 20 MCI patients and 16 AD and 11 MCI informants participated. Sessions were content reviewed to identify key impacts of cognitive impairment; results were compared across diagnostic groups and for patients and informants.Results: Seven key themes emerged: uncertainty of diagnosis, skill loss, change in social and family roles, embarrassment and shame, emotionality, insight, and burden. Patients were able to discuss the impact of cognitive impairment on their lives and reported frustration with recognized memory problems, diminished self-confidence, fear of embarrassment, concerns about changing family roles due to cognitive impairment, and anxiety. Informants reported more symptoms and more impairment than did patients and indicated increased dependence on others among patients.Conclusion: MCI and mild AD exert substantial burden on patients' lives and the lives of those close to them.