'I call it the blame and shame disease': a qualitative study about perceptions of social stigma surrounding type 2 diabetes.
'I call it the blame and shame disease': a qualitative study about perceptions of social stigma surrounding type 2 diabetes.
复制标题
DOI：
10.1136/bmjopen-2013-003384
复制
发表时间：
2013-11-18
期刊：
影响因子：
2.9
通讯作者：
Speight J
中科院分区：
文献类型：
--
作者：
Browne JL;Ventura A;Mosely K;Speight J
虽然与健康有关的耻辱感在其他疾病（肥胖症和艾滋病毒/艾滋病）中一直是大量研究的主题，但它在糖尿病中尚未得到大量关注。本研究的目的是探讨澳大利亚成年2型糖尿病（T2 DM）患者的社会经历，特别关注糖尿病相关污名的感知和体验。采用半结构化访谈进行定性研究，访谈内容包括录音、转录和主题分析。本研究在澳大利亚维多利亚州大都市和地区的非临床环境中进行。参与者主要通过代表糖尿病患者的国家消费者组织招募。居住在维多利亚的所有年龄≥18岁的T2 DM成人均有资格参加。25名T2 DM成人患者参与了研究（12名女性;中位年龄61岁;中位糖尿病病程5年）。 共有21名（84%）参与者表示，他们认为T2 DM是耻辱化的，或报告了耻辱化的证据。关于遭受耻辱的具体主题是，感到因造成自己的状况而受到他人的指责，受到负面的陈规定型观念的影响，受到歧视或生活机会受到限制。其他主题集中在耻辱的来源，其中包括媒体，医疗保健专业人员，朋友，家人和同事。与这种耻辱感的后果有关的主题也很明显，包括参与者不愿意向他人透露他们的状况和心理困扰。参与者认为，1型糖尿病患者不会经历类似的污名化。我们的研究发现了T2 DM患者经历和感知糖尿病相关社会耻辱的证据。需要进一步的研究来探索在个人和社会层面测量和减少糖尿病相关耻辱的方法，并探索1型糖尿病患者对耻辱的看法和经历。
While health-related stigma has been the subject of considerable research in other conditions (obesity and HIV/AIDS), it has not received substantial attention in diabetes. The aim of the current study was to explore the social experiences of Australian adults living with type 2 diabetes mellitus (T2DM), with a particular focus on the perception and experience of diabetes-related stigma. A qualitative study using semistructured interviews, which were audio recorded, transcribed and subject to thematic analysis. This study was conducted in non-clinical settings in metropolitan and regional areas in the Australian state of Victoria. Participants were recruited primarily through the state consumer organisation representing people with diabetes. All adults aged ≥18 years with T2DM living in Victoria were eligible to take part. Twenty-five adults with T2DM participated (12 women; median age 61 years; median diabetes duration 5 years). A total of 21 (84%) participants indicated that they believed T2DM was stigmatised, or reported evidence of stigmatisation. Specific themes about the experience of stigma were feeling blamed by others for causing their own condition, being subject to negative stereotyping, being discriminated against or having restricted opportunities in life. Other themes focused on sources of stigma, which included the media, healthcare professionals, friends, family and colleagues. Themes relating to the consequences of this stigma were also evident, including participants’ unwillingness to disclose their condition to others and psychological distress. Participants believed that people with type 1 diabetes do not experience similar stigmatisation. Our study found evidence of people with T2DM experiencing and perceiving diabetes-related social stigma. Further research is needed to explore ways to measure and minimise diabetes-related stigma at the individual and societal levels, and also to explore perceptions and experiences of stigma in people with type 1 diabetes.
登录
查看更多内容
影响因子：
--
作者：
Ciechanowski, PS;Katon, WJ;Russo, JE
通讯作者：
Russo, JE
影响因子：
1.9
作者：
Dussart, Francoise
通讯作者：
Dussart, Francoise
影响因子：
105.7
作者：
Stratton, IM;Adler, AI;Holman, RR
通讯作者：
Holman, RR
影响因子：
12.7
作者：
Puhl, Rebecca M.;Heuer, Chelsea A.
通讯作者：
Heuer, Chelsea A.
影响因子：
2.7
作者：
MacLean, Lynne;Edwards, Nancy;Ashley, Lisa
通讯作者：
Ashley, Lisa