Family response to childhood chronic illness: description of management styles.
Family response to childhood chronic illness: description of management styles.
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DOI：
10.1016/s0882-5963(05)80065-x
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发表时间：
1996-10-01
期刊：
影响因子：
--
通讯作者：
Zoeller, L
中科院分区：
文献类型：
--
作者：
Knafl, K;Breitmayer, B;Zoeller, L
基于家庭成员对疾病经历的主观描述，本研究确定了家庭对儿童慢性病的独特反应方式。根据三角测量的原理，研究人员使用结构化和非结构化数据收集技术，从63个家庭的多个家庭成员(生病的孩子、父母、好兄弟姐妹)那里纵向收集数据。在所有家庭中，都有一个患有慢性病的学龄儿童。确定了五种家庭管理风格(FMS)。每个主题都由不同的定性主题构成。在五个FMS中，配置反映了慢性病体验的以下主要方面的差异：疾病体验的定义、管理目标和方法以及疾病后果。这五个FMS(茁壮、适应、忍耐、挣扎和挣扎)代表了家庭在管理儿童慢性病方面所经历的连续困难。FMS还有助于了解儿童患有慢性病时家庭及其个人成员的不同结果相关的潜在过程。
Based on family members' subjective accounts of the illness experience, this study identifies unique styles of family response to childhood chronic illness. Drawing on principles of triangulation, the investigators collected data longitudinally from multiple family members (ill child, parents, well sibling) in 63 families using structured and unstructured data collection techniques. In all families there was a school-age child with a chronic illness. Five family management styles (FMSs) were identified. Each is made up of a distinct configuration of qualitative themes. Across the five FMSs, the configurations reflect differences in the following major aspects of the chronic illness experience: definition of the illness experience, management goals and approach, and illness consequences. The five FMSs (thriving, accommodating, enduring, struggling, and floundering) represent a continuum of difficulty families experience in managing a child's chronic illness. The FMSs also contribute to understanding the underlying processes associated with differing outcomes for families and their individual members when a child has a chronic illness.