Renaming schizophrenia? A survey among psychiatrists, mental health service users and family members in Italy

Renaming schizophrenia? A survey among psychiatrists, mental health service users and family members in Italy
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DOI:
10.1016/j.schres.2020.03.047
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发表时间:
2021-03-19
影响因子:
4.5
通讯作者:
Carpiniello, Bernardo
Carpiniello, Bernardo
中科院分区:
医学2区
文献类型:
--
作者:
Lasalvia, Antonio;Vita, Antonio;Carpiniello, Bernardo

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这项调查探讨了意大利的精神科医生、服务使用者和家庭成员如何看待精神分裂症这个词,以及他们是否认为改名是克服其耻辱的有用选择。关于精神分裂症一词的意见是通过先前国际调查中使用的自评问卷收集的。调查问卷由意大利精神病学协会的成员发放。对威尼托地区主要用户协会的成员进行了心理健康用户调查;意大利最具代表性的家庭协会之一对家庭成员进行了调查。总共有 350 名精神科医生、71 名心理健康用户和 110 名家庭成员填写了调查问卷。考虑到整个样本,41.5%的人认为这个词不合适,67.6%的人认为这个词带有侮辱性,72.3%的人主张改名。在精神科医生中,57% 的人认为精神分裂症是不恰当的,70% 的人认为这个词具有侮辱性,71% 的人赞成改名。同样,56% 的服务使用者和 71% 的家庭成员认为精神分裂症是一个侮辱性的术语,并且分别有 75% 和 77% 的人主张改名。在可能的替代术语上发现了相互矛盾的结果:精神科医生提出了多种可能的选择,其中大多数提到了“精神病”一词(53%),而用户和家庭成员则更喜欢提到“精神健康痛苦”这一广泛类别的术语。总体而言,三个利益相关者群体中的大多数受访者都同意精神分裂症应该重新命名,以减少对其的耻辱;然而,主要的挑战是对于最佳替代术语缺乏共识。 (C) 2020 Elsevier B.V. 保留所有权利。
This survey explores how psychiatrists, service users and family members in Italy perceive the term schizophrenia and if they consider a name change a useful option in order to overcome the stigma attached to it. Opinions on the term schizophrenia were collected by a self-rated questionnaire used in previous international surveys. Questionnaires were delivered members of the Italian Psychiatric Association. Survey of mental health users was conducted among members of the main users' association of the Veneto region; survey of family members was conducted among one of the most representative Italian family association. Overall, 350 psychiatrists, 71 mental health users and 110 family members filled in the questionnaires. Considering the whole sample, 41.5% found the term inappropriate, 67.6% stigmatizing and 72.3% advocated a name change. Among psychiatrists 57% reported that schizophrenia was inappropriate, 70% considered the term stigmatizing and 71% was in favor of a name change. Similarly, 56% of service users and 71% of family members found schizophrenia a stigmatizing term and, respectively, 75% and 77% advocated a name change. Conflicting results were found on possible alterative terms: psychiatrists proposed a wide range of possible options, most of which referred to the term 'psychosis' (53%), whereas users and family members preferred terms referring to the broad category of 'mental health suffering'. Overall, most of respondents in the three stakeholders' groups agree that schizophrenia should be renamed to reduce the stigma attached to it; the main challenge, however, is the lack of consensus on the best alternative term to use. (C) 2020 Elsevier B.V. All rights reserved.