Assessment of values, utilities and preferences in cancer patients
Assessment of values, utilities and preferences in cancer patients
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DOI：
10.1016/s0305-7372(96)90059-6
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发表时间：
1996-01-01
影响因子：
11.8
通讯作者：
Stiggelbout, AM
中科院分区：
文献类型：
--
作者：
deHaes, JCJM;Stiggelbout, AM
在评估医疗保健时，越来越多地提到患者的生活质量或其健康状况。在过去十年中，提到生活质量的出版物大量增加。这一增长是最近几项事态发展的结果。在第二次世界大战后的西方社会中，除了简单地消除贫困和拯救人民的生命之外，还有更多的余地。此外，改善人民的福利也被提上了政治议程。同样，卫生保健预算不仅可用于治疗病人，还可用于支付他们的福利。只要这些预算似乎是无限的，这就不是问题。然而，在过去几年中，它们变得更加严格。因此，在医疗需求几乎无穷无尽、技术进一步发展的同时，有必要调查干预措施是否真的对患者的健康产生了积极的影响，沿着治愈或生存。患者已成为更有意识的医疗保健消费者。现在，他们常常想知道，而且在许多国家也有法律的权利知道他们身上发生了什么。最初，生活质量研究最常用于描述疾病和治疗的影响。收集的数据旨在提高对患者生活的洞察力。因此，患者信息可以变得更加准确，护理也可以得到改善。然而，除了对影响的描述之外，上述发展要求决策更加明确。有限的预算必须以最佳方式使用。因此，各国政府强调，必须通过研究和比较医疗干预措施的有效性或成本效益来证实各种选择。同样，患者不仅想知道，而且还想通过权衡现有治疗方案的利弊来参与决策。因此，生活质量数据在支持决策过程中变得非常重要。特别是对患者生活质量和决策的研究
The quality of life of patients, or their health status, is being mentioned increasingly when medical care is evaluated. During the past decade, the increase in publications in which quality of life is referred to has been enormous. This increase has been the result of several recent developments. Within Western societies after the Second World War, there has been room for more than simply combating poverty and saving the lives of people. In addition, an amelioration of the well-being of the population was put on the political agenda. Likewise, health care budgets became available not only to cure patients but also to pay for their well-being. This was not a problem as long as these budgets seemed unlimited. However, they have become tighter over the last few years. Thus, while the demand for health care was almost endless and technology expanded further, it became necessary to investigate whether interventions really had a positive effect for patients in terms of health along with cure or survival.Developments have also occurred from the patients’ point of view. Patients have become more conscious consumers of health care. Now they often want, and in many countries have the legal right, to know what is happening to them. Quality-of-life research was done most often, originally, to describe the impact of disease and treatment. Collected data were meant to enhance insight into patients’ lives. As a result, patient information could become more accurate and care could be ameliorated. However, apart from the description of effects, the developments outlined above necessitate decision making to be more explicit. Limited budgets have to be used in an optimal way. As a result, governments have stressed the importance of substantiating choices by studying and comparing the effectiveness or cost-effectiveness of medical interventions. Likewise, patients not only want to know, but also want to participate in decision making by weighing the advantages and disadvantages of the available treatment options. Thus, quality-of-life data have become important in supporting the decision-making process. Research on patients’ quality of life and on decision making is particularly