Changes in caregiver burden and health-related quality of life of informal caregivers of older people with Dementia: evidence from the European RightTimePlaceCare prospective cohort study
Changes in caregiver burden and health-related quality of life of informal caregivers of older people with Dementia: evidence from the European RightTimePlaceCare prospective cohort study
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DOI：
10.1111/jan.12561
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发表时间：
2015-06-01
影响因子：
3.8
通讯作者：
Zwakhalen, Sandra M. G.
中科院分区：
文献类型：
--
作者：
Bleijlevens, Michel H. C.;Stolt, Minna;Zwakhalen, Sandra M. G.
目的描述8个欧洲国家痴呆患者非正式照顾者负担和健康相关生活质量的差异，并评估从居家护理向机构长期护理过渡后的变化。背景各国在负担和健康相关生活质量体验方面的差异很少被描述。设计前瞻性队列研究。方法采用面对面访谈的方法收集基线(2010年11月至2012年4月)和随访(3个月后)有关负担和健康相关生活质量的数据。两组非正式照顾者包括：(1)最近入住机构长期护理设施的痴呆症患者；以及(2)接受家庭护理的痴呆症患者。统计分析侧重于群体和国家之间的描述性比较。结果访问了大约2014年的非正式照顾者。与最近住院的痴呆症患者的非正式照顾者相比，在家照顾痴呆症患者的非正式照顾者经历了更多的负担。在与健康相关的生活质量方面，两组之间几乎没有发现差异。结果发现，各国之间的结果存在很大差异。向机构长期护理机构转型的痴呆症患者的非正式照顾者在随访时在负担和心理痛苦方面有统计学意义的减少。结论跨国差异可能与卫生和社会护理系统的差异有关。考虑到这一点，非正式的照顾者干预措施需要根据(国家)具体情况和(个人)需求量身定做。调查结果强调了接受机构长期护理对非正式照顾者福祉的积极影响。
AimsTo describe differences in caregiver burden and health-related quality of life of informal caregivers of people with dementia in eight European countries and assess changes after transition from home to institutional long-term care.BackgroundCountry differences in the experience of burden and health-related quality of life are rarely described.DesignProspective cohort study.MethodsData on burden and health-related quality of life were collected at baseline (conducted between November 2010-April 2012) and follow-up (after 3months) using face-to-face interviews. Two groups of informal caregivers included those: (1) of people with dementia recently admitted to institutional long-term care facilities; and those (2) of people with dementia receiving home care. Statistical analyses focused on descriptive comparisons between groups and countries.ResultsInformal caregivers of about 2014 were interviewed. Informal caregivers of people with dementia at home experienced more burden compared with informal caregivers of recently institutionalised people with dementia. Almost no differences in health-related quality of life were found between groups. Large differences between countries on outcomes were found. Informal caregivers of people with dementia who made the transition to an institutional long-term care facility experienced a statistically significant decrease in burden and psychological distress at follow-up.ConclusionCross-country differences may be related to differences in health and social care systems. Taking this into account, informal caregiver interventions need to be tailored to (country specific) contexts and (individual) needs. Findings highlight the positive impact of admission to institutional long-term care on informal caregiver well-being.