Exploring Lived Experiences of Chronic Pain Through Photo-Elicitation and Social Networking
Exploring Lived Experiences of Chronic Pain Through Photo-Elicitation and Social Networking
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DOI：
10.1093/pm/pny175
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发表时间：
2019-06-01
期刊：
影响因子：
3.1
通讯作者：
Mehr, David R.
中科院分区：
文献类型：
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作者：
Rolbiecki, Abigail J.;Teti, Michelle;Mehr, David R.
Objective.了解患者如何使用照片诱导和在线社交网络（Facebook）增强他们对疼痛生活的理解。设计随机试验干预组的定性子研究。设置/受试者。在过去的六个月里，患有疼痛的初级保健患者来自九个家庭，至少有两次疼痛就诊。方法.私人Facebook小组由一名主持人和一名患有慢性疼痛的患者调查员共同主持。患者被要求分享照片，这些照片引出了他们与慢性疼痛的生活经历，主持人引导参与者持续讨论这些照片，从而讨论疼痛的生活。通过Dedoose（一种定性分析软件）使用主题分析对Facebook讨论进行了分析。结果对照片的讨论引出了三个关于患者慢性疼痛生活经历的总体主题：1）患者重新定义的疼痛身份; 2）疼痛干扰生活和活动的享受; 3）患者功能减弱。结论.光诱导是一种创新的方式来阐明患者的生活经验与慢性疼痛。尽管存在一些技术挑战，但利用照片启发的Facebook支持小组可以提供一个现成的平台，可以促进患者经验的交流，并可能帮助患者与他们的提供者进行沟通。
Objective. To understand how patients' use of photo-elicitation and online social networks (Facebook) enhances their understanding of what it means to live with pain. Design. Qualitative substudy of the intervention arm of a randomized trial. Setting/Subjects. Primary care patients living with pain drawn from nine family practices with at least two pain visits in the last six months. Methods. The private Facebook group was co-facilitated by a moderator and a patient-investigator who lives with chronic pain. Patients were asked to share photos that elicit their lived experience with chronic pain, and facilitators guided participants in ongoing discussion about these photos, and thus the life with pain. Facebook discussions were analyzed via Dedoose (a qualitative analysis software) using thematic analysis. Results. Discussions of photos elicited three overarching themes regarding patients' lived experience with chronic pain: 1) patients' redefined pain identity; 2) pain interference with enjoyment of life and activities; and 3) patients' diminished ability to function. Conclusions. Photo-elicitation is an innovative way to shed light on patients' lived experience with chronic pain. Despite some technical challenges, Facebook support groups utilizing photo-elicitation can provide a readily available platform that can facilitate interchange of patient experiences and might help patients communicate with their providers.