Adaptation of an eHealth Intervention: iSupport for Carers of People with Rare Dementias.
Adaptation of an eHealth Intervention: iSupport for Carers of People with Rare Dementias.
复制标题
DOI：
10.3390/ijerph21010047
复制
发表时间：
2023-12-28
影响因子：
--
通讯作者：
中科院分区：
文献类型：
--
作者：
“iSupport”是一个由世界卫生组织创建的在线心理教育和技能发展干预项目，旨在支持痴呆症患者。该项目将issupport应用于罕见痴呆症患者的护理人员（issupport RDC），创造了一种新的资源来支持这一服务不足人群的健康和福祉。适应包括三个阶段：(1)协同设计方法产生初步适应；(2)第一阶段的研究结果分析，为issupport的发展提供信息；iSupport RDC;(3)适应后调查，以确定参与者对iSupport RDC适应的认同。14位参与者做出了贡献，产生了212个建议的调整，其中94个（92%）被认为是实用的、可推广的，并且与iSupport原则一致。这些调整包括内容和设计变化，包括解决罕见痴呆症（PCA、PPA、LBD和FTD）的挑战。iSupport RDC是对世卫组织iSupport干预措施的重大调整。它的量身定制性质承认了照顾罕见痴呆症患者的人们的独特需求，改善了他们获得专门资源和支持的机会。通过扩大对这一人群的支持，它有助于提高痴呆症护理的包容性，并扩大对罕见痴呆症的了解。一项可行性研究正在进行中，以评估issupport rdc的可接受性，并展望其文化适应性以使全球护理人员受益。
‘iSupport’ is an online psychoeducation and skills development intervention created by the World Health Organisation to support people with dementia. This project adapted iSupport for carers of people with rare dementias (iSupport RDC), creating a new resource to support the health and wellbeing of this underserved population. The adaptation involved three phases: (1) Co-design methods to generate preliminary adaptations; (2) Analysis of phase one findings informing adaptations to iSupport to develop; iSupport RDC; (3) Post-adaptation survey to ascertain participant agreement with the adaptations in iSupport RDC. Fourteen participants contributed, resulting in 212 suggested adaptations, of which 94 (92%) were considered practical, generalisable, and aligned with iSupport principles. These adaptations encompassed content and design changes, including addressing the challenges of rare dementias (PCA, PPA, LBD, and FTD). iSupport RDC represents a significant adaptation of the WHO iSupport intervention. Its tailored nature acknowledges the unique needs of people caring for someone with a rare dementia, improving their access to specialised resources and support. By extending iSupport to this population, it contributes to advancing dementia care inclusivity and broadening the understanding of rare dementias. A feasibility study is underway to assess iSupport RDCs acceptability, with prospects for cultural adaptations to benefit carers globally.