Issues in measuring quality of life in childhood cancer: Measures, proxies, and parental mental health
Issues in measuring quality of life in childhood cancer: Measures, proxies, and parental mental health
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DOI：
10.1111/1469-7610.00761
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发表时间：
2001-07-01
影响因子：
7.6
通讯作者：
Eiser, C
中科院分区：
文献类型：
--
作者：
Vance, YH;Morse, RC;Eiser, C
儿童和父母报告的生活质量（QOL）与父母心理健康、疾病压力源和儿童脆弱性的影响之间的关系通过两种生活质量测量方法进行了探讨：儿童癌症质量生活-32 （Varni等人，1998年a）和Disquol （Eiser, Cotter, Oades, Seamark, & Smith， 1999年）。32例急性淋巴细胞白血病患儿（平均年龄8.92岁）和36名家长在常规门诊时完成了生活质量测量。此外。父母还完成了一般健康问卷（GHQ-28）、对儿童脆弱性的感知以及与疾病相关的压力源。在两项儿童完成的生活质量测量的总体得分之间发现了显著的相关性。在各个子量表之间发现了一系列较差，中等到良好的相关性。在儿童和家长的报告中发现了低到中等程度的一致性。自我报告生活质量较差的孩子的母亲更抑郁。报告孩子生活质量较差的父母报告了更多的疾病压力因素，并认为他们的孩子更脆弱。儿童和父母对生活质量评价的一致性是生活质量新测量的必要条件的假设受到了挑战。
The relationship between child- and parent-reported quality of life (QOL) and the effects of parental mental health, illness stressors, and child vulnerability was explored using two measures of QOL: the Pediatric Cancer Quality Life-32 (Varni et al., 1998a) and the Disquol (Eiser, Cotter, Oades, Seamark, & Smith, 1999). Thirty-two children with acute lymphoblastic leukaemia (mean age = 8.92 years) and 36 parents completed measures of QOL when attending routine clinic. In addition. parents also completed the General Health Questionnaire (GHQ-28), perception of the child's vulnerability, and illness-related stressors. Significant correlations were found between the overall scores on the two child-completed QOL measures. with a range of poor, moderate to good correlations found between the individual subscales. Poor to moderate concordance was found between child and parent reports. Children who self-reported poorer QOL had mothers who were more depressed. Parents who reported poorer QOL for their child reported more illness stressors and perceived their child as being more vulnerable. Assumptions that concordance between child and parent ratings of QOL is a necessary requirement for new measures of QOL are challenged.