Harnessing mobile health technology to support long-term chronic illness management: exploring family caregiver support needs in the outpatient setting.
Harnessing mobile health technology to support long-term chronic illness management: exploring family caregiver support needs in the outpatient setting.
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DOI：
10.1093/jamiaopen/ooaa053
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发表时间：
2020-12
期刊：
影响因子：
2.1
通讯作者：
Choi SW
中科院分区：
文献类型：
--
作者：
Shin JY;Chaar D;Kedroske J;Vue R;Chappell G;Mazzoli A;Hassett AL;Hanauer DA;Park SY;Debra B;Choi SW
家庭团聚是一个重要的公共卫生问题，特别是随着人口老龄化。近年来，移动的健康（mHealth）技术已经成为一种潜在的低成本、可扩展的平台，以满足护理人员的支持需求，从而减轻护理人员的负担。本研究旨在探讨家庭照顾者在门诊护理的生活经验的支持需求，为未来的移动健康干预措施的发展提供信息。我们在美国中西部一个大型学术医疗中心的2个造血细胞移植（HCT）门诊进行了20次半结构化访谈。进行了专题分析，以确定新出现的专题。定性数据分析确定了HCT护理人员面临的5个主要主题：（I）由于患者的免疫功能低下状态而导致的生活方式限制;（II）由于当前资源的限制而导致的未满足的需求，包括不熟悉的医疗任务，没有必要的培训;以及（III）护理人员的适应策略，包括与家人和朋友的社会关系的改革。基于这些发现，我们提出了3个设计考虑因素，以指导未来移动健康干预的发展。本文的研究结果捕捉了家庭照顾者在门诊护理期间的生活经历。与会者普遍认为，工作具有挑战性，压力很大。因此，需要有效和可扩展的干预措施来支持护理人员。这项研究提供的数据，以指导未来的移动健康干预门诊设置的内容和设计。
Family caregiving is an important public health issue, particularly with the aging population. In recent years, mobile health (mHealth) technology has emerged as a potential low-cost, scalable platform to address caregiver support needs, and thereby alleviate the burden on caregivers. This study sought to examine the support needs of family caregivers in their lived experiences of outpatient care to inform the development of a future mHealth intervention. We conducted 20 semi-structured interviews in 2 outpatient hematopoietic cell transplant (HCT) clinics at a large academic medical center in the Midwestern United States. A thematic analysis was performed to define emerging themes. Qualitative data analysis identified 5 primary themes that HCT caregivers faced: (I) lifestyle restrictions due to the patient’s immunocompromised state; (II) Unmet needs due to limitations in the current resources, including unfamiliar medical tasks without necessary trainings; and (III) caregivers’ adaptive strategies, including reformation of social relationships with family and friends. Based on these findings, we suggest 3 design considerations to guide the development of a future mHealth intervention. The findings herein captured the family caregiver’s lived experiences during outpatient care. There was broad agreement that caregiving was challenging and stressful. Thus, effective and scalable interventions to support caregivers are needed. This study provided data to guide the content and design of a future mHealth intervention in the outpatient setting.
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