The subjective handicap of epilepsy - A new approach to measuring treatment outcome

The subjective handicap of epilepsy - A new approach to measuring treatment outcome
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DOI:
10.1093/brain/121.2.317
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发表时间:
1998-02-01
期刊:
影响因子:
14.5
通讯作者:
Sander, JWAS
Sander, JWAS
中科院分区:
医学1区
文献类型:
--
作者:
O'Donoghue, MF;Duncan, JS;Sander, JWAS

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It is now widely acknowledged that the impact of epilepsy on the individual extends beyond the occurrence of seizures, and that there is a need for outcome measures sensitive to these consequences. Until now these instruments have largely been developed within a 'quality of life' framework. The technical and conceptual difficulties that arise with measuring quality of life have led us to develop a more focused measurement model, the 'Subjective Handicap of Epilepsy' (SHE) scale, based on the World Health Organization's concept of handicap. The scale contains 32 items in six subscales: 'Work and activities' (eight items), 'Social and personal' (four items), 'Self-perception' (five items), 'Physical' (four items), 'Life-satisfaction' (four items) and a 'Change' scale (seven items); and it takes on average