The struggle towards 'the New Normal': a qualitative insight into psychosexual adjustment to prostate cancer

The struggle towards 'the New Normal': a qualitative insight into psychosexual adjustment to prostate cancer
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DOI:
10.1186/1471-2490-14-56
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发表时间:
2014-07-30
期刊:
影响因子:
2
通讯作者:
Juraskova, Ilona
Juraskova, Ilona
中科院分区:
医学4区
文献类型:
--
作者:
Hanly, Narelle;Mireskandari, Shab;Juraskova, Ilona

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背景:尽管越来越多的文献强调了前列腺癌治疗可能产生的显著和持久的副作用,但探索与治疗引起的副作用(如性功能障碍)及其对男性和他们的伴侣的影响的经验的研究有限。本研究旨在探讨前列腺癌患者及其伴侣的性心理适应、自我知觉、未满足的信息与支持需求的影响因素。方法:通过前列腺癌支持小组通讯招募的21名男性参加面对面的半结构式访谈,并进行主题分析。结果:定性分析揭示了影响男性性心理适应的三个相互关联的主题:1)性心理影响,2)沟通与支持,3)融合过程。男性报告了令人痛苦的性和排尿困难,自我认知受到污染,亲密关系发生变化。获得足够的信息和支持,并与他们的医生和合作伙伴进行良好的沟通,有助于更好地适应前列腺癌治疗。接受治疗的重大影响包括改变生活方式,应对情绪斗争,努力接受和整合治疗后的“新正常”自我和性生活。结论:与卫生专业人员和伴侣充分沟通的重要性,特别是关于治疗对性功能和康复选择的影响,被强调为促进适应过程的关键因素。前列腺癌患者将受益于更好地获得及时和量身定制的信息和决策资源、持续的多学科护理和支助小组以及对性和心理咨询的适当转介。
Background: Despite the growing body of literature which highlights the potential for significant and enduring side-effects of prostate cancer treatment, there is limited research exploring the experience of living with the treatment-induced side-effects such as sexual dysfunction, and their repercussions for men and their partners. The aim of this qualitative study was to explore factors influencing psychosexual adjustment, self-perception, and unmet information and support needs of prostate cancer patients and their partners.Methods: Twenty-one men, recruited via a prostate cancer support group newsletter, participated in face-to-face semi-structured interviews, which were subjected to thematic analysis.Results: The qualitative analysis revealed three inter-connected main themes which contributed to men's psychosexual adjustment: i) Psychosexual impact, ii) Communication and support, and iii) Integration process. Men reported distressing sexual and urinary difficulties, tainted self-perception and altered intimate relationships. Receiving adequate information and support, and having good communication with their doctors and partners facilitated better adjustment to prostate cancer treatment. Coming to terms with the significant impact of treatment had involved making lifestyle changes, coping with emotional struggles and striving to accept and integrate their post-treatment "new normal" self and sexual life.Conclusions: The importance of adequate communication with health professionals and partners, especially regarding treatment effects on sexual function and rehabilitation options, was highlighted as a key factor facilitating the adjustment process. Prostate cancer patients would benefit from improved access to timely and tailored information and decision-making resources, ongoing multidisciplinary care, and support groups, as well as appropriate referrals for sexual and psychological counselling.