Health-related information needs in a large and diverse sample of adult cancer survivors: implications for cancer care.
Health-related information needs in a large and diverse sample of adult cancer survivors: implications for cancer care.
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DOI：
10.1007/s11764-008-0055-0
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发表时间：
2008-09-01
期刊：
影响因子：
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通讯作者：
Hesse, Bradford W
中科院分区：
文献类型：
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作者：
Beckjord, Ellen Burke;Arora, Neeraj K;Hesse, Bradford W
背景技术背景：本研究描述了成年癌症幸存者的信息需求，确定社会人口统计学，健康和医疗保健相关因素与信息需求，并探讨信息需求和幸存者的感知心理和身体健康之间的关系。方法：1040名幸存者2-5年后诊断谁被确定通过两个癌症登记被纳入本分析。自我报告问卷评估了六类信息需求，社会人口，健康和医疗保健相关的变量，和感知的心理和身体health.RESULTS：信息需求是普遍的，多种多样的，大多数幸存者需要更多的信息测试和治疗，健康促进，副作用和症状，人际关系和情感问题。多变量分析表明，幸存者谁是年轻的，谁报告非白人种族/民族，谁报告的后续癌症护理质量不佳，谁有更多的共病健康状况有更多的信息需求。调整后的社会人口和健康相关的变量，更多的信息需求与更差的感知心理和身体健康。结论：大多数癌症幸存者需要更多的信息，在生存期间保持良好的健康状况。健康传播干预措施，如幸存者护理计划，具有很好的潜力，可以满足幸存者的信息需求，同时提高后续癌症护理的质量和与健康有关的生活质量。
BACKGROUND: This study describes the information needs of adult cancer survivors, identifies sociodemographic, health, and healthcare-related factors associated with information needs, and examines the relationship between information needs and survivors' perceived mental and physical health.METHODS: One thousand forty survivors 2-5 years post-diagnosis who were identified via two cancer registries were included in the present analysis. Self-report questionnaires assessed six categories of information needs, sociodemographic, health, and healthcare-related variables, and perceived mental and physical health.RESULTS: Information needs were prevalent and varied; most survivors need more information about tests and treatments, health promotion, side effects and symptoms, and interpersonal and emotional issues. Multivariate analyses suggested that survivors who were younger, who reported non-White race/ethnicity, who reported less than excellent quality of follow-up cancer care, and who had more comorbid health conditions had more information needs. After adjustment for sociodemographic and health-related variables, more information needs were associated with worse perceived mental and physical health.CONCLUSIONS: Most cancer survivors needed more information about maintaining good health outcomes during survivorship. Health communication interventions, such as Survivorship Care Plans, have excellent potential to address survivors' information needs while improving quality of follow-up cancer care and health-related quality of life.