Consent for mobile phone surveys of non-communicable disease risk factors in low-resource settings: an exploratory qualitative study in Uganda.
Consent for mobile phone surveys of non-communicable disease risk factors in low-resource settings: an exploratory qualitative study in Uganda.
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DOI：
10.21037/mhealth.2019.07.05
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发表时间：
2019-01-01
期刊：
影响因子：
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通讯作者：
Pariyo, George
中科院分区：
文献类型：
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作者：
Mwaka, Erisa;Nakigudde, Janet;Pariyo, George
背景技术背景：由于缺乏有关预防和控制非传染性疾病的及时决策的数据，对决策者构成了特殊挑战，特别是在资源有限的情况下。正在开发新的数据收集方法，包括预先录制的交互式语音应答电话调查，以支持在这种情况下快速汇编人口一级的疾病风险因素信息。我们的目的是确定信息，可用于优化同意的方法，为未来移动的电话调查（MPS）在乌干达和，可能的话，类似的contextings.METHODS：我们进行了深入的定性研究，在乌干达的主要利益相关者同意的方法，和潜在的挑战，为预先录制的IVR非传染性疾病风险因素调查。半结构化访谈进行了14个关键的线人。一个语境化的主题方法被用来解释的结果支持的代表quotes.Results：在设计同意的MPS方法确定了几个潜在的挑战，包括低识字率和缺乏适当的方式来评估理解和记录同意。建议在MPS之前与潜在受访者进行沟通，并提供回调选项，作为改善知情同意过程中理解的可能策略。“选择加入”的授权形式比“选择退出”的授权形式更可取。有特别关注的数据安全性和保密性，以及如何与此相关的事项将被传达给MPS responders.CONCLUSIONS：这些本地的见解提供了重要的信息，以支持优化同意MPS，其使用越来越多的全球推进公共卫生监督和研究的建设性的方式。
BACKGROUND: Lack of data for timely decision-making around the prevention and control of non-communicable diseases (NCDs) presents special challenges for policy makers, especially in resource-limited settings. New data collection methods, including pre-recorded Interactive Voice Response (IVR) phone surveys, are being developed to support rapid compilation of population-level disease risk factor information in such settings. We aimed to identify information that could be used to optimize consent approaches for future mobile phone surveys (MPS) employed in Uganda and, possibly, similar contexts.METHODS: We conducted an in-depth qualitative study with key stakeholders in Uganda about consent approaches, and potential challenges, for pre-recorded IVR NCD risk factor surveys. Semi-structured interviews were conducted with 14 key informants. A contextualized thematic approach was used to interpret the results supported by representative quotes.RESULTS: Several potential challenges in designing consent approaches for MPS were identified, including low literacy and the lack of appropriate ways of assessing comprehension and documenting consent. Communication with potential respondents prior to the MPS and providing options for callbacks were suggested as possible strategies for improving comprehension within the consent process. "Opt-in" forms of authorization were preferred over "opt-out". There was particular concern about data security and confidentiality and how matters relating to this would be communicated to MPS respondents.CONCLUSIONS: These local insights provide important information to support optimization of consent for MPS, whose use is increasing globally to advance public health surveillance and research in constructive ways.