Web-Based STAR E-Learning Course Increases Empathy and Understanding in Dementia Caregivers: Results from a Randomized Controlled Trial in the Netherlands and the United Kingdom
Web-Based STAR E-Learning Course Increases Empathy and Understanding in Dementia Caregivers: Results from a Randomized Controlled Trial in the Netherlands and the United Kingdom
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DOI：
10.2196/jmir.4025
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发表时间：
2015-10-01
影响因子：
7.4
通讯作者：
Droes, Rose-Marie
中科院分区：
文献类型：
--
作者：
Hattink, Bart;Meiland, Franka;Droes, Rose-Marie
背景资料：在未来几十年中，痴呆症患者的数量将翻一番，加上我们老龄化社会中工作人口的迅速下降，预计将导致为痴呆症患者提供护理的专业人员数量大幅减少。因此，护理将越来越多地由未经培训的非正规护理人员和志愿人员提供。为了促进有效的护理，避免未经培训和受过培训的护理人员负担过重，他们必须掌握适当的技能。为此，由来自6个国家（荷兰、瑞典、意大利、马耳他、罗马尼亚和英国）的教育、技术和痴呆症护理领域的专家组成的欧洲技能培训和再培训（星星）项目共同努力，创建和评估了一个多语言电子学习工具。星星培训门户网站为正式和非正式照顾者提供痴呆症护理培训。目的：本研究的目的是评估星星对非正式照顾者、志愿者和专业照顾者的用户友好性、有用性和影响。方法：在2到4个月的时间里，实验组可以访问星星培训门户网站，这是一个基于Web的门户网站，由8个模块组成，其中2个有基本水平，6个额外的模块在中级和高级水平。实验组还可以利用在线同行和专家社区获得支持和信息交流。对照组在研究结束后免费使用星星。在荷兰和英国的一项随机对照试验中，除了专业护理人员（N=142）外，还对非正式护理人员和志愿者进行了星星培训门户网站的评估。在基线和2至4个月后，采用自评、在线、标准化问卷进行评估。主要结果指标是用户友好性，有用性和星星的知识，态度和照顾者对痴呆症的方法的影响。次要的结果措施是同理心，生活质量，负担，和照顾者的感觉competitive.Results：星星的评价积极的所有用户组的有用性和用户友好性。以人为本的护理方法和对痴呆症的积极态度的总分显着影响，实验组和对照组的分数增加。关于同理心，星星训练组在痛苦、同理心关怀和从痴呆症患者的角度出发方面都有显著改善。然而，在实验组中，有一个显着的减少自我报告的感觉competitive.Conclusions：星星培训门户网站是一个有用的和用户友好的电子学习方法，它已证明其能够提供显着的积极影响照顾者的态度和同情。
Background: The doubling of the number of people with dementia in the coming decades coupled with the rapid decline in the working population in our graying society is expected to result in a large decrease in the number of professionals available to provide care to people with dementia. As a result, care will be supplied increasingly by untrained informal caregivers and volunteers. To promote effective care and avoid overburdening of untrained and trained caregivers, they must become properly skilled. To this end, the European Skills Training and Reskilling (STAR) project, which comprised experts from the domains of education, technology, and dementia care from 6 countries (the Netherlands, Sweden, Italy, Malta, Romania, and the United Kingdom), worked together to create and evaluate a multilingual e-learning tool. The STAR training portal provides dementia care training both for informal and formal caregivers.Objective: The objective of the current study was to evaluate the user friendliness, usefulness, and impact of STAR with informal caregivers, volunteers, and professional caregivers.Methods: For 2 to 4 months, the experimental group had access to the STAR training portal, a Web-based portal consisting of 8 modules, 2 of which had a basic level and 6 additional modules at intermediate and advanced levels. The experimental group also had access to online peer and expert communities for support and information exchange. The control group received free access to STAR after the research had ended. The STAR training portal was evaluated in a randomized controlled trial among informal caregivers and volunteers in addition to professional caregivers (N=142) in the Netherlands and the United Kingdom. Assessments were performed with self-assessed, online, standardized questionnaires at baseline and after 2 to 4 months. Primary outcome measures were user friendliness, usefulness, and impact of STAR on knowledge, attitudes, and approaches of caregivers regarding dementia. Secondary outcome measures were empathy, quality of life, burden, and caregivers' sense of competence.Results: STAR was rated positively by all user groups on both usefulness and user friendliness. Significant effects were found on a person-centered care approach and on the total score on positive attitudes to dementia; both the experimental and the control group increased in score. Regarding empathy, significant improvements were found in the STAR training group on distress, empathic concern, and taking the perspective of the person with dementia. In the experimental group, however, there was a significant reduction in self-reported sense of competence.Conclusions: The STAR training portal is a useful and user-friendly e-learning method, which has demonstrated its ability to provide significant positive effects on caregiver attitudes and empathy.