"They Would Lift My Spirits": Sources of Support for Family Surrogate Decision-Makers at the End of Life.
"They Would Lift My Spirits": Sources of Support for Family Surrogate Decision-Makers at the End of Life.
复制标题
“他们会振奋我的精神”：临终时家庭代理决策者的支持来源。
DOI：
10.1097/njh.0000000000000939
复制
发表时间：
2023
期刊：
影响因子：
--
通讯作者：
Nolan,MarieT
中科院分区：
文献类型：
--
作者：
Fisher,MarlenaC;Parrillo,Elaina;Petchler,Claire;Kub,Joan;Hughes,MarkT;Sulmasy,DanielP;Baker,Deborah;Nolan,MarieT
代理决策者在生命结束时为亲人做出关键决定，有些人会经历持久的负面心理后果。了解他们所依赖的支持以及他们所看重的支持类型可能会为护理人员以及与代孕妈妈一起工作的其他健康团队成员提供信息。该研究的目的是探讨在亲人临终时向代理决策者提供的决策支持和其他类型的支持，以及这些支持的感知有用性。这项对混合方法研究数据的二次分析涉及对 2010 年至 2014 年间对美国 13 名代理决策者进行的定性访谈记录的检查。使用持续比较方法来确定围绕临终代理决策支持的共同主题。代理人重视预先指示以及与亲人就治疗偏好进行的对话。代理人描述了许多不同类型的人参与决策和其他类型的支持。最后，代理人很高兴能够得到保证，因为他们在做决定方面做得很好，并且似乎从包括医疗保健团队、家人和朋友在内的各种来源寻求这种类型的肯定。护士有能力提供这种肯定，因为他们花时间照顾病人和家人。未来的研究应该进一步探索肯定代理人角色的概念，作为他们为亲人做出决定时的支持手段。
Surrogate decision-makers make critical decisions for loved ones at the end of life, and some experience lasting negative psychological outcomes. Understanding whom they rely on for support and the types of support they value may inform nursing care and that of other health team members who work with surrogates. The purpose of the study was to explore decision support and other types of support provided to surrogate decision-makers at the end of life of their loved one and perceived usefulness of the support. This secondary analysis of data from a mixed-methods study involved the examination of the transcripts of qualitative interviews with 13 surrogate decision-makers in the United States, conducted between 2010 and 2014. A constant comparative method was used to identify common themes surrounding surrogate decision support at the end of life. Surrogates valued advance directives and conversations with their loved one about treatment preferences. Surrogates described involving many different types of people in decision-making and other types of support. Finally, surrogates appreciated being reassured that they were doing a good job in making decisions and seemed to seek out this type of affirmation from various sources including the health care team, family, and friends. Nurses are well-positioned to provide this affirmation because of the time that they spend caring for the patient and family. Future research should further explore the concept of affirmation of surrogates in their role as a means of support as they make decisions for a loved one.