Racial Differences in Data Quality and Completeness: Spinal Cord Iniury Model Systems' Experiences
Racial Differences in Data Quality and Completeness: Spinal Cord Iniury Model Systems' Experiences
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DOI：
10.1310/sci2402-110
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发表时间：
2018-03-01
影响因子：
2.9
通讯作者：
DeVivo, Michael J.
中科院分区：
文献类型：
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作者：
Chen, Yuying;Lin, Hui-Yi;DeVivo, Michael J.
背景：在脊髓损伤(SCI)患者中，少数族裔经历了不成比例的更高的疾病负担。了解按种族/族裔划分的数据质量将有助于更好地设计种族健康差异研究，并了解潜在的错误/偏见。目的：研究纵向脊髓损伤数据库中反应完整性的种族/民族差异。方法：这项研究包括7,507名参与者(5,483名非西班牙裔白人，1,414名非西班牙裔黑人和610名西班牙裔)，他们在2001-2006年间返回美国进行随访，随访时年龄为18岁。缺失数据被定义为对面试项目的任何缺失、未知或拒绝回复。结果：克雷格残障评估与报告技术简式经济自给自足量表、CAGE问卷、药物使用、Diener‘s生活满意度问卷、患者健康问卷、疼痛严重程度的总缺失率分别为29.7%、9.5%、9.7%、10.7%、12.0%、9.8%。在控制了人口统计学、伤害因素、数据收集方式和研究地点后，非西班牙裔黑人和西班牙裔美国人的图表测量缺失率显著高于非西班牙裔白人。在研究的其他结果指标中，非西班牙裔黑人的缺失数据也显着高于非西班牙裔白人，但在西班牙裔和非西班牙裔白人之间没有显着差异。结论：我们的研究强调了旨在改善无反应或反应不完整的研究方法的重要性，特别是在非西班牙裔黑人中，因为我们采取行动减少种族/民族差异，并努力解释差异是如何以及为什么发生在SCI人群中。
Background: Among people with spinal cord injury (SCI), minorities experience a disproportionately higher burden of diseases. Knowledge of data quality by race/ethnicity will help better design racial health disparity research and understand potential errors/biases. Objective: To investigate racial/ethnic differences in response completeness in a longitudinal SCI database. Methods: This study included 7,507 participants (5,483 non-Hispanic whites, 1,414 non-Hispanic blacks, and 610 Hispanics) enrolled in the National SCI Database who returned for follow-up between 2001 and 2006 and were aged >= 18 years at follow-up. Missing data were defined as any missing, unknown, or refusal response to interview items. Results: The overall missing rate was 29.7%, 9.5%, 9.7%, 10.7%, 12.0%, and 9.8% for the Craig Handicap Assessment and Reporting Technique-Short Form (CHART) economic self-sufficiency subscale, CAGE questionnaire, drug use, Diener's Satisfaction with Life Scale, Patient Health Questionnaire, and pain severity, respectively. The missing rate for the CHART measure was significantly higher among non-Hispanic blacks and Hispanics than among non-Hispanic whites, after controlling for demographics, injury factors, mode of data collection, and study sites. The missing data in the other outcome measures examined were also significantly higher among non-Hispanic blacks than among non-Hispanic whites but were not significantly different between Hispanics and non-Hispanic whites. Conclusion: Our study highlights the importance of research methodology designed to improve non-response or response incompleteness, particularly in non-Hispanic blacks, as we move to reduce racial/ethnic disparities and strive to explain how and why disparities occur in the SCI population.