Moving forward: breaking the cycle of mistrust between American Indians and researchers.
Moving forward: breaking the cycle of mistrust between American Indians and researchers.
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DOI：
10.2105/ajph.2013.301480
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发表时间：
2013-12
影响因子：
12.7
通讯作者：
Daley CM
中科院分区：
文献类型：
--
作者：
Pacheco CM;Daley SM;Brown T;Filippi M;Greiner KA;Daley CM
美洲印第安人（AI）在任何种族/族裔群体中有一些最差的记录健康结果。研究在解决这些健康差距方面发挥着至关重要的作用。历史上和最近的不道德研究，特别是Havasupai糖尿病项目，已经在人工智能社区中产生了不信任。为了解决中心地带（中西部）的一些认可机构对不道德研究的担忧，美国印第安社区健康中心（CAICH）发起了一系列努力，告知认可机构研究参与者的权利。CAICH教育卫生研究人员了解学习和尊重社区的历史，文化，价值观和愿望的重要性，当从事研究与该社区。通过以社区为基础的参与性研究，CAICH还授权认可机构维护其作为研究参与者的权利。
American Indians (AIs) have some of the poorest documented health outcomes of any racial/ethnic group. Research plays a vital role in addressing these health disparities. Historical and recent instances of unethical research, specifically the Havasupai diabetes project, have generated mistrust in AI communities. To address the concerns about unethical research held by some AIs in the Heartland (Midwest), the Center for American Indian Community Health (CAICH) has launched a series of efforts to inform AIs about research participants’ rights. CAICH educates health researchers about the importance of learning and respecting a community’s history, culture, values, and wishes when engaging in research with that community. Through community-based participatory research, CAICH is also empowering AIs to assert their rights as research participants.