Three decades of ethical, legal, and social implications research: Looking back to chart a path forward
Three decades of ethical, legal, and social implications research: Looking back to chart a path forward
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DOI：
10.1016/j.xgen.2022.100150
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发表时间：
2022-07-13
期刊：
影响因子：
--
通讯作者：
Cho, Mildred K.
中科院分区：
文献类型：
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作者：
Dolan, Deanne Dunbar;Lee, Sandra Soo-Jin;Cho, Mildred K.
30多年前，美国国立卫生研究院（NIH）的国家人类基因组研究中心（NCHGR）及其人类基因组计划（HGP）的合作伙伴能源部（DOE）向社会科学家、伦理学家、律师和其他人征集建议，以探讨绘制和测序人类基因组的伦理、法律的和社会影响（ELSI）。今天，在人类基因组计划完成近20年后，国家人类基因组研究所（NHGRI）的ELSI研究计划继续提供支持。它促进了ELSI研究发展成为一个全球性的研究领域，独特地定位于许多学科的联系，并接近基础和应用科学研究。我们研究了第一个ELSI计划的形成，并考虑是否在公共利益的科学政策可以存在于NHGRI预算预留的范围内。
More than thirty years ago in the United States, the National Center for Human Genome Research (NCHGR) at the National Institutes of Health (NIH) and its partner in the Human Genome Project (HGP), the Department of Energy (DOE), called for proposals from social scientists, ethicists, lawyers, and others to explore the ethical, legal, and social implications (ELSI) of mapping and sequencing the human genome. Today, nearly twenty years after the completion of the HGP, the ELSI Research Program of the National Human Genome Research Institute (NHGRI) continues this support. It has fostered the growth of ELSI research into a global field of study, uniquely positioned at the nexus of many academic disciplines and in proximity to basic and applied scientific research. We examine the formation of the first ELSI program and consider whether science policy in the public interest can exist within the confines of a set-aside from the NHGRI budget.