Speech Perceptions and Health-Related Quality of Life Among Children With Cleft Lip and Palate

Speech Perceptions and Health-Related Quality of Life Among Children With Cleft Lip and Palate
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DOI:
10.1097/scs.0000000000003718
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发表时间:
2017-08-01
影响因子:
0.9
通讯作者:
Waljee, Jennifer F.
Waljee, Jennifer F.
中科院分区:
医学4区
文献类型:
--
作者:
Bickham, Rebecca S.;Ranganathan, Kavitha;Waljee, Jennifer F.

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背景:腭裂患者的言语感知与健康相关生活质量(HRQOL)之间的关系尚不清楚。本研究的目的是确定:患者和父母的语音感知之间的协议,患者/父母的语音感知和客观分析的语音语言病理学家(SLP)之间的相关性,以及客观语音分析和HRQOL之间的关系唇腭裂或无腭(CLCP.Methods)的儿童:作者调查了108 CLCP患者谁在一个大型三级医疗中心接受治疗,从2013年至2014年。询问患者和父母关于他们的言语困难,SLP对每位患者进行感知言语分析。患者报告的调查工具被用来评估焦虑,抑郁,愤怒,同伴关系,耻辱和整体心理健康。作者评估了患者和SLP分析之间的协议,以及语音和HRQOL.Results之间的关联:患者和家长报告的语音质量表现出中等协议的儿童的语音质量(r=0.46-0.64)。父母和患者的言语感知与SLP分析没有很好的相关性(V=0.06-0.30)。患者的语音感知与抑郁症(P=0.03),而SLP分析与愤怒(P=0.03,P=0.004),抑郁症(P=0.007),困难与同伴关系(P=0.02)。结论:患者和父母有不同的看法,孩子的语音质量,他们的评级不同SLP感知语音分析。患者的言语感知和SLP分析与生活质量的重要方面相关,在评估CLCP儿童时应予以考虑。
Background:The association between perception of speech and health-related quality of life (HRQOL) among patients with cleft palate is not well understood. The purpose of this study was to determine: the agreement between patient and parent perception of speech, the correlation between patient/parent speech perception and objective analysis by a speech-language pathologist (SLP), and the relationship between objective speech analysis and HRQOL among children with cleft lip with or without palate (CLCP).Methods:The authors surveyed 108 CLCP patients who received treatment at a large tertiary medical center from 2013 to 2014. Patients and parents were queried regarding their difficulty with speech, and an SLP performed perceptual speech analysis with each patient. Patient-reported survey instruments were used to assess anxiety, depression, anger, peer relationships, stigma, and overall psychosocial health. The authors assessed the agreement between patients and SLP analysis as well as association between speech and HRQOL.Results:Patient and parent-reported speech quality demonstrated moderate agreement regarding the quality of the child's speech (r=0.46-0.64). Parent and patient speech perception was not well associated with SLP analysis (V=0.06-0.30). Patient speech perception was correlated with depression (P=0.03), while SLP analysis was correlated with anger (P=0.03, P=0.004), depression (P=0.007), and difficulty with peer relationships (P=0.02).Conclusions:Patients and parents have different perceptions of the quality of the child's speech, and their ratings differ from SLP perceptual speech analysis. Both patient speech perception and SLP analysis are correlated with important aspects of quality of life, and should be considered when evaluating children with CLCP.