Burden of major depressive disorder and quality of life among mothers of children with autism spectrum disorder in urban bangladesh

Burden of major depressive disorder and quality of life among mothers of children with autism spectrum disorder in urban bangladesh
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DOI:
10.1002/aur.2227
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发表时间:
2019-10-24
期刊:
影响因子:
4.7
通讯作者:
Munir, Kerim
Munir, Kerim
中科院分区:
医学2区
文献类型:
--
作者:
Naheed, Aliya;Islam, Md. Saimul;Munir, Kerim

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这项横断面研究探讨了患有自闭症谱系障碍(ASD)的儿童的母亲的抑郁症和生活质量(QoL)的负担,这些儿童在孟加拉国城市达卡的6所学校就读,这些学校为ASD儿童提供特殊教育服务。所有同意的母亲年龄均为18岁及以上,并符合DSM-V-TR研究版-非患者版结构化访谈的重度抑郁症(MDD)标准,由经过培训的评分员进行。采用EuroQol五维标准化问卷评估生活质量。在45%的母亲中诊断出MDD,并且在那些没有外出工作的人中比例更高,在家里没有儿童保育支持,当他们寻求照顾患有ASD的孩子时,对提供者的质量表示满意度较低,并报告接受邻居对患有ASD的孩子的负面态度。生活质量与抑郁症、母亲的疾病、对ASD儿童的医疗保健提供者的满意度低以及邻居对孩子的负面态度呈负相关。生活质量与家庭月收入呈正相关,与ASD儿童上学率的提高呈正相关。ASD患儿母亲MDD患病率高,且与生活质量差相关。将心理健康服务和对母亲的支持纳入ASD儿童护理可能会解决他们面临的抑郁症的沉重负担,并提高他们的整体生活质量。自闭症研究2019年。(c)2019年国际自闭症研究学会,Wiley Periodicals,Inc。在孟加拉国城市达卡的6所为自闭症谱系障碍(ASD)儿童提供特殊教育服务的学校中,对自闭症谱系障碍(ASD)儿童的母亲的抑郁水平进行了评估。几乎每两个母亲中就有一个被发现患有重度抑郁症。这些母亲的生活质量普遍较差。将母亲的心理健康服务与ASD儿童护理相结合,可能会解决ASD儿童母亲的抑郁负担,并改善整体生活质量。
This cross-sectional study examined the burden of depression and quality of life (QoL) among mothers of children with autism spectrum disorder (ASD) attending six schools offering special educational services for children with ASD in urban Dhaka, Bangladesh. All consenting mothers were 18 years of age and older and met criteria for major depressive disorder (MDD) on the Structured Interview for DSM-V-TR Research Version-non patient edition administered by trained raters. QoL was assessed by the EuroQol five-dimensional standardized questionnaire. MDD was diagnosed in 45% of mothers and was proportionally higher among those who did not work outside the home, had no childcare support at home, expressed low level of satisfaction with the quality of providers when they had sought care for their children with ASD, and reported being recipient of negative attitudes from neighbors toward their children with ASD. QoL was negatively associated with MDD, mothers' illness, and low satisfaction with the health care providers for children with ASD, as well as experiencing a negative attitude by neighbors toward their children. QoL was positively associated with the reported family monthly income and improvement of the children with ASD on school attendance. The prevalence of MDD among mothers of children with ASD was high and associated with poor QoL. Integrating mental health services and supports for mothers in the ASD care of children is likely to address the high burden of depression they face, and improve their overall quality of life. Autism Res 2019. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary The levels of depression were assessed among mothers of children with autism spectrum disorder (ASD) attending six schools offering special educational services for children with ASD in urban Dhaka, Bangladesh. Almost one in two mothers was found to have major depression. The quality of life of these mothers was generally poor. Integrating mental health services for mothers with ASD care in children is likely to address the burden of depression among the mothers of children with ASD and improve overall quality of life.