Self-administered Expanded Disability Status Scale with functional system scores correlates well with a physician-administered test
Self-administered Expanded Disability Status Scale with functional system scores correlates well with a physician-administered test
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DOI：
10.1177/135245850100700311
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发表时间：
2001-06-01
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影响因子：
--
通讯作者：
Kraft, GH
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文献类型：
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作者：
Bowen, J;Gibbons, L;Kraft, GH
在大型流行病学研究中，需要患者管理的措施来经济有效地评估残疾。背景：一家伪造多发性硬化症中心的门诊。方法：采用EDSS-S自填式EDSS问卷。临床确诊多发性硬化的连续患者完成了EDSS-S（n=95）。在一些访视期间，医生完成EDSS（EDSS-P）。使用功能系统（FS）评分确定评分低于4.0。通过两种方法计算4.0分以上的评分，单独使用步态和结合使用步态和功能系统评分。结果：EDSS-P评分范围为0-9.5（平均5.1，中位数5.0，78%为女性。年龄17-78岁，平均年龄45岁）。平均EDSS-P、EDSS-S和组内一致性相关系数为：单独使用Ambrosine的EDSS（4.6，5.1，0.89），EDSS使用Ambassador和FS评分（4.6，5.3，0.87），肠/膀胱FS评分（1.6，1.7 0.79），锥体FS评分（2.1，2.4，0.67），感觉FS评分（1.6，2.1，0.60），小脑FS评分脑干FS评分（0.5，1.2，0.45），视觉FS评分（1.9，1.3，0.38），脑FS评分（0.6，2.3，0.27）。结论：患者和医生的EDSS评分与肠/膀胱FS评分之间存在很好的相关性。其他四个FS评分相关性中等。总的来说，病人比医生对自己的残疾评分更高。
Patient-administered measures ore needed to assess disability cost-effectively in large epidemiological studies. Setting: An outpatient clinic in a forge multiple sclerosis center. Methods: A self-administered EDSS questionnaire was developed (EDSS-S). Consecutive patients with clinically definite multiple sclerosis completed the EDSS-S (n=95). During the some visit, a physician completed on EDSS (EDSS-P). Scores below 4.0 were determined using functional system (FS) scores. Scores above 4.0 were calculated by two methods, using gait alone and using gait and functional system scores combined. Results: EDSS-P scores ranged from 0-9.5 (mean 5.1, median 5.0, 78% female. age 17-78, mean age 45). Mean EDSS-P, EDSS-S and intraclass correlation coefficients of agreement were: EDSS using ambulation alone (4.6, 5.1, 0.89), EDSS using ambulation and FS scores (4.6, 5.3, 0.87), bowel/bladder FS scores (1.6, 1.7 0.79), pyramidal FS scores (2.1, 2.4, 0.67), sensory FS scores (1.6, 2.1, 0.60), cerebellar FS scores (1.1, 1.6, 0.55), brainstem FS scores (0.5, 1.2, 0.45), vision FS scores (1.9, 1.3, 0.38), cerebral FS scores (0.6, 2.3, 0.27). Conclusions: Very good correlation was seen between patient and physician scores for EDSS and the bowel/bladder FS score. Four other FS scores correlated moderately. In general, patients scored themselves more disabled than physicians.