Features of online health communities for adolescents with type 1 diabetes.

Features of online health communities for adolescents with type 1 diabetes.
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DOI:
10.1177/0193945913520414
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发表时间:
2014-10
影响因子:
1.8
通讯作者:
Mulvaney SA
Mulvaney SA
中科院分区:
医学4区
文献类型:
--
作者:
Ho YX;O'Connor BH;Mulvaney SA

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这项探索性研究的目的是检查1型糖尿病(T1D)青少年可用的糖尿病在线健康社区(OHC)。我们试图识别和分类网站功能,并将其与基于证据的过程,以提高自我管理。我们审查了18个OHC,并确定了以下五个功能类别:社会学习和网络,信息,指导,参与和个人健康数据共享。虽然存在与改善自我管理相关的功能,如社会学习,但结果表明,更多的指导或结构将有助于确保这些过程专注于促进积极的信念和行为。加强现有OHC的指南相关功能和结构可以为有效的糖尿病自我管理支持提供更多机会。为了支持临床建议,需要更多的研究来定量地将OHC的特征和参与与患者结局联系起来。
The aim of this exploratory study was to examine diabetes online health communities (OHCs) available to adolescents with type 1 diabetes (T1D). We sought to identify and classify site features and relate them to evidence-based processes for improving self-management. We reviewed 18 OHCs and identified the following five feature categories: social learning and networking, information, guidance, engagement, and personal health data sharing. While features that have been associated with improved self-management were present, such as social learning, results suggest that more guidance or structure would be helpful to ensure that those processes were focused on promoting positive beliefs and behaviors. Enhancing guidance-related features and structure to existing OHCs could provide greater opportunity for effective diabetes self-management support. To support clinical recommendations, more research is needed to quantitatively relate features and participation in OHCs to patient outcomes.
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