Caregiver-burden in Parkinson's disease is closely associated with psychiatric symptoms, falls, and disability
Caregiver-burden in Parkinson's disease is closely associated with psychiatric symptoms, falls, and disability
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DOI：
10.1016/j.parkreldis.2005.06.011
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发表时间：
2006-01-01
影响因子：
4.1
通讯作者：
Jahanshahi, M
中科院分区：
文献类型：
--
作者：
Schrag, A;Hovris, A;Jahanshahi, M
帕金森病（PD）患者的大部分护理是由非正式护理人员提供的；他们的照顾不仅为病人提供身体和情感上的支持，而且在经济上也起着很大的作用，并阻止了早期的养老院安置。为了支持护理人员的这一角色。有必要了解照顾者负担的程度以及与照顾者负担和痛苦增加相关的因素。因此，我们对123名PD患者的护理人员进行了邮寄调查，以评估护理人员负担及其相关因素。大多数照顾者是女性（66%）。超过40%的照顾者表示，他们的健康受到照顾的影响，几乎一半的人抑郁得分增加，三分之二的人报告说他们的社交生活受到影响。在调整疾病持续时间后，照顾者负担在年轻和老年照顾者之间、男性和女性照顾者之间没有差异。照顾者的负担随着残疾和PD症状的增加而增加，特别是精神健康问题，如抑郁、幻觉或混乱，以及跌倒。照顾者负担得分与患者抑郁和生活质量得分、照顾者自身对婚姻和性关系的满意度也显著相关。我们的结论是，应该更多地关注照顾者的情绪和身体健康，特别是在患有精神并发症和跌倒的晚期PD患者中。这些研究结果还表明，护理人员和患者的生活质量密切相关，并强调了将护理人员负担纳入PD相关问题的重要性，以改善患者和护理人员的生活。(c) 2005 Elsevier Ltd版权所有。
The majority of care of patients with Parkinson's disease (PD) is provided by informal caregivers; their caregiving not only offers physical and emotional support for patients but also plays a large economic role and prevents early nursing home placement. In order to support caregivers in this role. it is necessary to understand the extent of caregiver-burden and factors associated with increased caregiver-burden and distress. We therefore conducted a postal survey in 123 caregivers of patients with PD to assess caregiver-burden and factors associated with it. The majority of caregivers were female (66%). Over 40% of caregivers indicated that their health had suffered as a result of caregiving, almost half had increased depression scores, and two-thirds reported that their social life had suffered. After adjustment of disease duration, there was no difference in caregiver-burden between younger and older caregivers, or between male and female caregivers. Caregiver-burden increased with increasing, disability and symptoms of PD, particularly with mental health problems such as depression, hallucinations, or confusion, and with falls. Caregiver-burden scores also correlated significantly with the patients' depression and quality of life scores, and with caregivers' own satisfaction with their marital and sexual relationship. We conclude that more attention should be paid to caregivers' emotional and physical health, particularly in advancing PD with psychiatric complications and falls. These findings also demonstrate that caregiver and patient quality of life are closely linked and emphasize the importance of including caregiver-burden among the problems associated with PD in order to improve patient and caregiver lives. (c) 2005 Elsevier Ltd. All rights reserved.