The Genetic Information Nondiscrimination Act (GINA): Public Policy and Medical Practice in the Age of Personalized Medicine
The Genetic Information Nondiscrimination Act (GINA): Public Policy and Medical Practice in the Age of Personalized Medicine
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DOI：
10.1007/s11606-012-1988-6
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发表时间：
2012-06-01
影响因子：
5.7
通讯作者：
Feldman, Eric A.
中科院分区：
文献类型：
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作者：
Feldman, Eric A.
调查数据显示，许多人担心健康保险公司或雇主的基因歧视。事实上，这种歧视尚未成为一个重大问题。本文考察了美国基因歧视的恐惧和现实，描述了国会如何试图通过2008年遗传信息非歧视法案（GINA）来禁止这种歧视，并探讨了GINA对普通内科医生及其机构的影响。结论是，医疗服务提供者和卫生保健机构必须熟悉GINA的一般意图和具体条款，并应继续收集有助于提供高质量医疗的遗传信息。不这样做违背了他们的医疗使命，降低了患者应得的护理质量。
Survey data suggest that many people fear genetic discrimination by health insurers or employers. In fact, such discrimination has not yet been a significant problem. This article examines the fear and reality of genetic discrimination in the United States, describes how Congress sought to prohibit such discrimination by passing the Genetic Information Nondiscrimination Act of 2008 (GINA), and explores the implications of GINA for general internists and their institutions. It concludes that medical providers and health care institutions must be familiar with the general intent and specific terms of GINA, and should continue to collect genetic information that can contribute to the high quality provision of medical treatment. Not doing so violates their medical mission and diminishes the quality of care patients deserve.