Active inclusion of people living with dementia in planning for dementia care and services in low- and middle-income countries
Active inclusion of people living with dementia in planning for dementia care and services in low- and middle-income countries
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DOI：
10.1177/14713012211041426
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发表时间：
2021-09-01
影响因子：
2.4
通讯作者：
Comas-Herrera, Adelina
中科院分区：
文献类型：
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作者：
Breuer, Erica;Freeman, Emily;Comas-Herrera, Adelina
在高收入国家，让痴呆症患者参与服务设计和规划已变得越来越普遍。在低收入和中等收入国家，这种情况仍然很少见，世界上三分之二的痴呆症患者生活在这些国家。在这篇评论文章中，我们探讨了低收入和中等收入国家将痴呆症患者纳入规划的障碍，并提出了将痴呆症患者纳入护理和服务规划的理由。我们建议如何在个人、社区或国家和州层面实现这一目标，并遵循以下原则：1）尊重痴呆症患者的自决权； 2）重视痴呆症患者对痴呆症的独特理解； 3) 创建一种积极包容的文化，为痴呆症患者创造参与的空间；4) 确保提供适当的便利以最大限度地提高参与度。
Involving people living with dementia in service design and planning has become more common in high-income countries. It remains rare in low- and middle-income countries where two-thirds of the world's people with dementia live. In this commentary article, we explore the barriers to inclusion of people living with dementia in planning in low- and middle-income countries and make a case for the inclusion of people living with dementia in care and service planning. We suggest how this can be done at individual, community or national and state level using the following principles: 1) respecting the rights of people living with dementia to self-determination; 2) valuing people living with dementia's unique understanding of dementia; 3) creating a culture of active inclusion which creates a space for people living with dementia to participate and 4) ensuring appropriate accommodations are in place to maximise participation.