What patient involvement means to new patients at two HIV clinics: A longitudinal, qualitative study.
What patient involvement means to new patients at two HIV clinics: A longitudinal, qualitative study.
复制标题
患者参与对两个艾滋病毒诊所的新患者意味着什么:一项纵向定性研究。
DOI:
10.1016/j.pec.2019.03.017
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发表时间:
2019
影响因子:
3.5
通讯作者:
Dang,BichN
中科院分区:
文献类型:
--
作者:
Freytag,Jennifer;Jiang,ZhixinJ;Giordano,ThomasP;Westbrook,RobertA;McCurdy,SherylA;Njue-Marendes,Sarah;Dang,BichN
ObjectivesThis study 1) defines patient involvement from the perspective of patients new to a provider, 2) describes provider communication that patients perceive as promoting involvement, and 3) examines changes in patient definitions of involvement over time.MethodsWe enrolled 56 patients at two HIV clinics in Houston, Texas, from August 2013 until March 2015. We interviewed patients three times during the first year of care and analyzed interviews using content analysis.ResultsThe mean age was 45 years; 54% were men. Patient definitions of involvement ranged from adherence- to decision-oriented. Analysis revealed three provider communication behaviors that patients perceive as promoting involvement: 1) soliciting patient feedback, 2) discussing treatment options and trade-offs, 3) narrating the decision-making process. Definitions of involvement can change over time as providers reframe the patient's illness as manageable and through perceived partnerships with the provider.ConclusionProvider communication plays a critical role in shaping new patients' perception of involvement and can make patients feel involved even when patients do not actively make medical decisions.Practical implicationsFinding strategies to make patients feel involved in their care is important, particularly for new patients, even if those strategies do not necessarily promote more talk from the patient.
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