What patient involvement means to new patients at two HIV clinics: A longitudinal, qualitative study.

What patient involvement means to new patients at two HIV clinics: A longitudinal, qualitative study.
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患者参与对两个艾滋病毒诊所的新患者意味着什么:一项纵向定性研究。

DOI:
10.1016/j.pec.2019.03.017
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发表时间:
2019
影响因子:
3.5
通讯作者:
Dang,BichN
Dang,BichN
中科院分区:
医学2区
文献类型:
--
作者:
Freytag,Jennifer;Jiang,ZhixinJ;Giordano,ThomasP;Westbrook,RobertA;McCurdy,SherylA;Njue-Marendes,Sarah;Dang,BichN

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ObjectivesThis study 1)defines patient involvement from the perspective of patients new to a provider,2)describes provider communication that patients perceive as promoting involvement,and 3)examines changes in patient definitions of involvement over time.MethodsWe enrolled 56 patients at two HIV clinics in Houston,Texas,from August 2013 until March 2015.我们采访了病人三次,在第一年的护理和分析访谈内容analysis.ResultsThe平均年龄为45岁,54%是男性。患者参与的定义范围从坚持到决策导向。分析显示,患者认为促进参与的三种提供者沟通行为:1)征求患者反馈,2)讨论治疗方案和权衡,3)叙述决策过程。参与的定义可以随着时间的推移而改变,因为提供者重新定义患者的疾病为可管理的,并通过与供应商的感知伙伴关系.ConclusionProvider沟通在塑造新患者的参与感知中起着至关重要的作用,即使患者不积极做出医疗决策,也可以使患者感到参与。特别是对于新病人,即使这些策略不一定能促进病人更多的谈话。
ObjectivesThis study 1) defines patient involvement from the perspective of patients new to a provider, 2) describes provider communication that patients perceive as promoting involvement, and 3) examines changes in patient definitions of involvement over time.MethodsWe enrolled 56 patients at two HIV clinics in Houston, Texas, from August 2013 until March 2015. We interviewed patients three times during the first year of care and analyzed interviews using content analysis.ResultsThe mean age was 45 years; 54% were men. Patient definitions of involvement ranged from adherence- to decision-oriented. Analysis revealed three provider communication behaviors that patients perceive as promoting involvement: 1) soliciting patient feedback, 2) discussing treatment options and trade-offs, 3) narrating the decision-making process. Definitions of involvement can change over time as providers reframe the patient's illness as manageable and through perceived partnerships with the provider.ConclusionProvider communication plays a critical role in shaping new patients' perception of involvement and can make patients feel involved even when patients do not actively make medical decisions.Practical implicationsFinding strategies to make patients feel involved in their care is important, particularly for new patients, even if those strategies do not necessarily promote more talk from the patient.
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