Sudden unexpected death in epilepsy (SUDEP): don't ask, don't tell?
Sudden unexpected death in epilepsy (SUDEP): don't ask, don't tell?
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DOI：
10.1136/jnnp.2005.066852
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发表时间：
2006-02-01
影响因子：
11
通讯作者：
Duncan, S
中科院分区：
文献类型：
--
作者：
Morton, B;Richardson, A;Duncan, S
背景：英国国家临床卓越研究所发布了指南，规定所有癫痫患者都应获得有关癫痫猝死(SUDEP)的信息。方法：我们对英国神经学家协会数据库中列出的英国所有执业神经科医生的调查问卷进行了调查，询问他们在什么情况下告诉患者有关SUDEP的情况。结果：在经过验证的受访者中，5%的人与所有患者讨论了SUDEP，26%的人讨论了大多数，61%的人讨论了SUDEP，7.5%的人没有讨论。SUDEP被讨论的最常见的原因是患者询问它，神经科医生咨询有SUDEP已知危险因素的人。结论：我们发现的差异，虽然不一定与指南一致，但反映了患者对其病情知识的需求的差异。
Background: The National Institute for Clinical Excellence in the UK has issued guidelines stating all individuals with epilepsy be given information about sudden unexpected death in epilepsy (SUDEP).Methods: We conducted a survey of current practice among UK neurologists, using a questionnaire sent to all practising neurologists in the UK listed on the Association of British Neurologists database, asking under what circumstances they told patients about SUDEP.Results: Of the validated respondents, 5% discussed SUDEP with all patients, 26% with a majority, 61% with a few, and 7.5% with none. The commonest reasons for SUDEP to be discussed were the patient asking about it and the neurologist counselling people with known risk factors for SUDEP.Conclusions: The variation we found, although not necessarily in tune with the guidelines, reflects the variation in patients' need for knowledge about their condition.