Concurrence between subject and proxy ratings of quality of life for people with and without intellectual disabilities
Concurrence between subject and proxy ratings of quality of life for people with and without intellectual disabilities
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DOI：
10.1080/132697800112767
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发表时间：
2000-01-01
影响因子：
1.3
通讯作者：
Davidson, John A.
中科院分区：
文献类型：
--
作者：
McVilly, Keith R.;Burton-Smith, Rosanne M.;Davidson, John A.
本研究的目的是检查受试者自我报告的生活质量（QOL）与代理人（一级亲属或类似于家庭成员的支持角色）对其生活质量的评估之间的一致性。进行了两项研究。第一项研究使用ComQol-A4（康明斯，1993），检查了非残疾受试者的QOL与由父母或兄弟姐妹（N = 78受试者/代理人对）代表他们进行的评级之间的一致程度。第二项研究使用ComQol-ID 4（康明斯，1993），并检查轻度智力残疾受试者与父母或支持工作者的代理人（N = 24受试者/代理人对）的QOL评分之间的一致性。在这两项研究中，协议的变量，包括主体/代理的生活安排，性别相似性，代理性别和同情的影响进行了检查。与以前的研究利用非标准化的方法来评估生活质量相比，这两项研究的结果表明，总体上受试者/代理人的一致性很高。代理人对评级的高估或低估是最小的。这些发现支持使用标准化方法，如ComQol用于基于代理的QOL测量。此外，研究的因素均未直接影响受试者/代理QOL报告之间的一致性。如果采用标准化的生活质量方法，如果代理人是在密切和定期接触的基础上选择的，那么他们是男性还是女性、同居家庭成员还是非同居支持工作者似乎并不重要。
The purpose of this investigation was to examine concurrence between subjects' self-reported quality of life (QOL) and assessments of their QOL made by proxies who were either a first degree relative, or were acting in a supportive role similar to that of a family member. Two studies were conducted. The first study, using ComQol-A4 (Cummins, 1993), examined the degree of concurrence between non-disabled subjects' QOL and ratings made on their behalf by proxies who were either a parent or a sibling (N = 78 subject/proxy pairs). The second study utilised ComQol-ID4 (Cummins, 1993), and examined agreement between QOL ratings made by subjects with mild intellectual disability and proxies who were either parents or support workers (N = 24 subject/proxy pairs). In both studies the effects on agreement of variables including subject/proxy living arrangements, gender similarity, and proxy gender and empathy were examined. In contrast to previous research utilising non-standardised approaches to QOL assessment, results from both studies indicated overall a high degree of subject/proxy concurrence. Overestimation or underestimation of ratings by proxies was minimal. These findings endorse the use of standardised approaches such as ComQol for proxy-based measures of QOL. Also, none of the factors investigated directly affected agreement between subject/proxy QOL reports. If standardised approaches to QOL are employed, and if proxies are selected on the basis of close and regular contact, it does not seem to matter if they are male or female, cohabiting family members or non-cohabiting support workers.