"Not Taking it Will Just be Like a Sin": Young People Living with HIV and the Stigmatization of Less-Than-Perfect Adherence to Antiretroviral Therapy
"Not Taking it Will Just be Like a Sin": Young People Living with HIV and the Stigmatization of Less-Than-Perfect Adherence to Antiretroviral Therapy
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DOI：
10.1080/01459740.2017.1306856
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发表时间：
2017-01-01
影响因子：
2.3
通讯作者：
Rhodes, Tim
中科院分区：
文献类型：
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作者：
Bernays, Sarah;Paparini, Sara;Rhodes, Tim
正在制定全球卫生优先事项，以解决青春期坚持艾滋病毒抗逆转录病毒治疗的问题。很少有研究探讨年轻人对他们在秘密处理治疗和沉默状况时所面临的复杂的社会和关系挑战的看法。为了解决这个问题，我们提出了一项对英国、爱尔兰、美国和乌干达感染艾滋病毒的年轻人进行的纵向定性研究的结果，该研究嵌入了 BREATHER 国际临床试验中。借鉴戈夫曼的耻辱概念，我们分析了艾滋病毒诊所（作为已知艾滋病毒的罕见场所）中的关系动态，以及年轻人的关系如何因不坚持治疗而受到威胁。年轻人对维护其作为患者声誉的反思和策略提出了有关艾滋病毒医疗的特定形式和影响他们的治疗依从性的道德化的问题，以及这些如何限制整个流行病期间的护理机会。
Global health priorities are being set to address questions on adherence to HIV antiretroviral therapy in adolescence. Few studies have explored young people's perspectives on the complex host of social and relational challenges they face in dealing with their treatment in secret and their condition in silence. In redressing this, we present findings from a longitudinal qualitative study with young people living with HIV in the UK, Ireland, US, and Uganda, embedded within the BREATHER international clinical trial. Drawing from Goffman's notion of stigma, we analyze relational dynamics in HIV clinics, as rare spaces where HIV is known, and how young people's relationships may be threatened by non-adherence to treatment. Young people's reflections on and strategies for maintaining their reputation as patients raise questions about particular forms of medicalization of HIV and the moralization of treatment adherence that affect them, and how these may restrict opportunities for care across the epidemic.