The primary caregiver's perception of the dying trajectory An exploratory study
The primary caregiver's perception of the dying trajectory An exploratory study
复制标题
主要照顾者对死亡轨迹的看法一项探索性研究
作者：
E. Holing
这项探索性描述性研究的目的是描述死于癌症的成年人的主要照顾者所感知的死亡轨迹的维度。一名绝症患者去世后 12 个月内，对 14 名在家中主要照顾者进行了采访。使用描述性统计和内容分析来分析数据。研究结果表明，对于大多数护理人员来说，他们预期的死亡轨迹持续时间接近实际持续时间。通常认为患者的轨迹比护理人员的轨迹慢。受试者在轨迹过程中识别出关键事件或他们关心的问题。这些被分为两大类（压力类和快乐类）和 17 个小类。最多比例的受试者提到至少一件事件的内容领域是提供护理时的身体困难、难以观察患者的身体症状、护理人员与患者之间的亲密关系以及家人聚在一起探望或提供支持。使用六点量表来衡量每个报告的关键事件的身体和情绪强度。研究结果表明，对于护理人员和患者来说，临终轨迹中情感上的强烈程度大于身体上的强烈程度。
The purpose of this exploratory descriptive study was to describe dimensions of the dying trajectory as perceived by the primary caregiver of an adult who died of cancer. Fourteen individuals who were the primary caregiver of a terminally ill person in the home were interviewed within 12 months of the patient's death. Data were analyzed using descriptive statistics and content analysis. Findings show that for the majority of caregivers, their expected duration of the dying trajectory approached the actual duration. The trajectory was generally perceived as passing more slowly for the patient than for the caregiver. Subjects identified critical events or concerns for them during the course of the trajectory. These were categorized into two major categories (stressful and joyful) and 17 subcategories. The content areas in which the largest percent of subjects named at least one event were physical difficulty in providing care, difficulty in watching the patient's physical symptoms, closeness between caregiver and patient, and family coming together to visit or offer support. The physical and emotional intensity of each reported critical event was measured using a six-point scale. The findings suggest that the dying trajectory is more emotionally intense than physically intense for both caregiver and patient.