Cerebral Palsy in Child Neurology and Neurodevelopmental Disabilities Training: An Unmet Need.
Cerebral Palsy in Child Neurology and Neurodevelopmental Disabilities Training: An Unmet Need.
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DOI：
10.1177/08830738211072711
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发表时间：
2022-03
影响因子：
1.9
通讯作者：
中科院分区：
文献类型：
--
作者：
脑瘫（CP）是儿童运动障碍的最常见原因。然而，在脑瘫患者的护理方面，对儿童神经学家和神经发育障碍专家的培训指导有限。我们试图确定培训项目负责人对脑瘫诊断和管理培训的重要性和充分性的印象。在这项横断面研究中，所有82名儿童神经病学和神经发育障碍项目负责人被要求完成一项调查，询问项目特点，脑瘫培训方面，脑瘫培训的重要性，以及脑瘫护理毕业时的感知能力。有35个答复（43%的答复率）。几乎所有的项目负责人（91%）都认为“学习诊断脑瘫”非常重要，大多数（71%）认为“学习管理脑瘫”非常重要。虽然大多数项目主任报告说，受训者在脑瘫诊断方面非常或非常胜任（77%），但只有43%的项目主任认为受训者在脑瘫管理方面非常或非常胜任。在脑瘫学院的时间与脑瘫诊断（P = 0.03）和管理（P <0.01）的较高能力相关。脑瘫诊所的存在与脑瘫管理能力的提高相关（P = 0.03）。儿童神经病学和神经发育残疾项目主任报告说，脑瘫培训对住院医师很重要;然而，很大一部分人认为住院医师没有为治疗脑瘫做好充分准备。脑瘫的发展和接触脑瘫诊所可以改善培训，转化为更好地照顾脑瘫患者。
Cerebral palsy (CP) is the most common cause of childhood motor disability. However, there is limited guidance on training of child neurologists and neurodevelopmental disability specialists in the care of individuals with cerebral palsy. We sought to determine training program directors’ impressions of the importance and adequacy of training in the diagnosis and management of cerebral palsy. In this cross-sectional study, all 82 child neurology and neurodevelopmental disability program directors were asked to complete a survey querying program characteristics, aspects of training in cerebral palsy, importance of cerebral palsy training, and perceived competence at graduation in cerebral palsy care. There were 35 responses (43% response rate). Nearly all program directors (91%) reported “learning to diagnose cerebral palsy” as very important, and most (71%) felt that “learning to manage cerebral palsy” was very important. Although most program directors reported trainees to be very or extremely competent in cerebral palsy diagnosis (77%), only 43% of program directors felt that trainees were very or extremely competent in cerebral palsy management. Time spent with cerebral palsy faculty was associated with higher reported competence in cerebral palsy diagnosis (P = .03) and management (P < .01). The presence of a cerebral palsy clinic was associated with higher reported competence in cerebral palsy management (P = .03). Child neurology and neurodevelopmental disability program directors reported that training in cerebral palsy is important for residents; however, a significant proportion felt that residents were not very well prepared to manage cerebral palsy. The development of cerebral palsy curricula and exposure to cerebral palsy clinics may improve training, translating to better care of individuals with cerebral palsy.
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影响因子：
26.1
作者：
Novak, Iona;Morgan, Cathy;Adde, Lars;Blackman, James;Boyd, Roslyn N.;Brunstrom-Hernandez, Janice;Cioni, Giovanni;Damiano, Diane;Darrah, Johanna;Eliasson, Ann-Christin;de Vries, Linda S.;Einspieler, Christa;Fahey, Michael;Fehlings, Darcy;Ferriero, Donna M.;Fetters, Linda;Fiori, Simona;Forssberg, Hans;Gordon, Andrew M.;Greaves, Susan;Guzzetta, Andrea;Hadders-Algra, Mijna;Harbourne, Regina;Kakooza-Mwesige, Angelina;Karlsson, Petra;Krumlinde-Sundholm, Lena;Latal, Beatrice;Loughran-Fowlds, Alison;Maitre, Nathalie;McIntyre, Sarah;Noritz, Garey;Pennington, Lindsay;Romeo, Domenico M.;Shepherd, Roberta;Spittle, Alicia J.;Thornton, Marelle;Valentine, Jane;Walker, Karen;White, Robert;Badawi, Nadia
通讯作者：
Badawi, Nadia
影响因子：
30.8
作者：
Jin, Sheng Chih;Lewis, Sara A.;Bakhtiari, Somayeh;Zeng, Xue;Sierant, Michael C.;Shetty, Sheetal;Nordlie, Sandra M.;Elie, Aureliane;Corbett, Mark A.;Norton, Bethany Y.;van Eyk, Clare L.;Haider, Shozeb;Guida, Brandon S.;Magee, Helen;Liu, James;Pastore, Stephen;Vincent, John B.;Brunstrom-Hernandez, Janice;Papavasileiou, Antigone;Fahey, Michael C.;Berry, Jesia G.;Harper, Kelly;Zhou, Chongchen;Zhang, Junhui;Li, Boyang;Heim, Jennifer;Webber, Dani L.;Frank, Mahalia S. B.;Xia, Lei;Xu, Yiran;Zhu, Dengna;Zhang, Bohao;Sheth, Amar H.;Knight, James R.;Castaldi, Christopher;Tikhonova, Irina R.;Lopez-Giraldez, Francesc;Keren, Boris;Whalen, Sandra;Buratti, Julien;Doummar, Diane;Cho, Megan;Retterer, Kyle;Millan, Francisca;Wang, Yangong;Waugh, Jeff L.;Rodan, Lance;Cohen, Julie S.;Fatemi, Ali;Lin, Angela E.;Phillips, John P.;Feyma, Timothy;MacLennan, Suzanna C.;Vaughan, Spencer;Crompton, Kylie E.;Reid, Susan M.;Reddihough, Dinah S.;Shang, Qing;Gao, Chao;Novak, Iona;Badawi, Nadia;Wilson, Yana A.;McIntyre, Sarah J.;Mane, Shrikant M.;Wang, Xiaoyang;Amor, David J.;Zarnescu, Daniela C.;Lu, Qiongshi;Xing, Qinghe;Zhu, Changlian;Bilguvar, Kaya;Padilla-Lopez, Sergio;Lifton, Richard P.;Gecz, Jozef;MacLennan, Alastair H.;Kruer, Michael C.
通讯作者：
Kruer, Michael C.
影响因子：
3.8
作者：
Valencia, Ignacio;Feist, Terri B.;Gilbert, Donald L.
通讯作者：
Gilbert, Donald L.
影响因子：
120.7
作者：
Moreno-De-Luca, Andres;Millan, Francisca;Martin, Christa L.
通讯作者：
Martin, Christa L.
影响因子：
1.9
作者：
Gilbert, Donald L.;Patterson, Marc C.;Valencia, Ignacio
通讯作者：
Valencia, Ignacio