Biobanks, bioethics and concepts of donated blood in the UK
Biobanks, bioethics and concepts of donated blood in the UK
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DOI：
10.1111/j.1467-9566.2006.00546.x
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发表时间：
2006-09-01
影响因子：
2.9
通讯作者：
Busby, Helen
中科院分区：
文献类型：
--
作者：
Busby, Helen
近年来，国际生物伦理机构对捐赠组织和相关信息在基因研究中的使用做出了重要声明(1)。这些组织遵循生物伦理学的“立法”模式(2)，提出了一些一般原则，以促进此类研究中捐献组织的公平和公正使用。然而，不同国家政权在这一领域的政府政策有不同的制定。在本文中，我利用英国最近关于国家基因“生物库”的辩论来说明围绕使用捐献血液进行基因研究的政策讨论的形式和结构是如何建立在先前将血液视为公共物品的全国共识的基础上的。
In recent years international bioethics bodies have made prominent declarations about the uses of donated tissue and related information in genetic research(1). Following the 'legislative' mode of bioethics(2), these organisations have put forward a number of general principles with a view to promoting the fair and equitable use of donated tissue in such research. However, government policies in this field are shaped differently in different national regimes. In this paper, I use recent debates in the UK about a national genetic 'biobank' to illustrate how the shape and texture of policy discussions surrounding the use of donated blood for genetic research have been built upon a prior national consensus that regarded blood as a public good.