A web-based daily care training to improve the quality of life of mothers of children with cerebral palsy: A randomized controlled trial

A web-based daily care training to improve the quality of life of mothers of children with cerebral palsy: A randomized controlled trial
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DOI:
10.1016/j.ridd.2020.103731
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发表时间:
2020-10-01
影响因子:
3.1
通讯作者:
Hosseinzadeh, S.
Hosseinzadeh, S.
中科院分区:
医学2区
文献类型:
--
作者:
Nobakht, Z.;Rassafiani, M.;Hosseinzadeh, S.

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背景:中度至重度脑瘫(CP)儿童的母亲必须花费很长时间来照顾孩子。这种耗时的责任会影响他们的身心健康。因此,作为照顾者的母亲需要接受专门的培训来照顾孩子。 目的:本研究的目的是评估一种基于网络的干预措施的有效性,该干预措施用于脑瘫儿童的日常护理培训,以改善其母亲的生活质量(QOL)、焦虑、抑郁、压力和肌肉骨骼疼痛。方法和程序:本研究是一项单盲随机对照试验。 91 名 CP 儿童的母亲,其粗大运动功能分类系统 (GMFCS) 级别为 III、I 和 ,年龄在 4 至 12 岁之间,采用区组随机化方法分为干预组和对照组。对照组的母亲接受常规的面对面职业治疗干预,干预组的母亲接受 12 周的网络干预。两组干预前后均测量生活质量、抑郁、焦虑、压力、疼痛。 转归与结果:协方差分析结果显示,控制疼痛前测平均分后,干预组与对照组后测平均分差异显着(P < 0.05)。干预组的身体健康平均分和后测总生活质量分数均显着高于控制前测分数的对照组。结论和启示:设计的基于网络的干预措施显着影响护理人员的生活质量和疼痛。该干预措施可用于为脑瘫儿童的母亲提供日常护理培训。
Background: Mothers of moderately to severely affected children with cerebral palsy (CP) have to spend a long time to take care of their children. This time-consuming responsibility affects their physical and psychosocial health. Therefore, mothers as caregivers are required to receive special training to take care of their children.Aims: The aim of this study was to evaluate the effectiveness of a developed web-based intervention for daily care training of children with CP on their mothers' quality of life (QOL), anxiety, depression, stress, and their musculoskeletal pain.Methods and procedures: This study was a single blind randomized controlled trial. 91 mothers of children with CP with Gross Motor Function Classification System (GMFCS) levels III, I , and , who aged from 4 to 12 years were assigned to the intervention and control groups using block randomization. Mothers in the control group received their routine face to face occupational therapy intervention and mothers in the intervention group received 12 weeks web-based intervention. QOL, depression, anxiety, stress, and pain were measured before and after the intervention in both groups.Outcomes and results: The results of analysis of covariance showed that after controlling the mean score of pretest of pain, the mean score of post-tests in the intervention and control groups was significantly different (P < 0.05). The mean scores of physical health and total QOL scores of post-tests in the intervention group were significantly higher than the control group with controlling pretest scores.Conclusions and implications: Designed web-based intervention affects the caregivers QOL and pain significantly. This intervention can be used to provide daily care training for mothers of children with CP.