The emerging diabetes online community.
The emerging diabetes online community.
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DOI：
10.2174/1573399811666150421123448
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发表时间：
2015
影响因子：
3.3
通讯作者：
Hood KK
中科院分区：
文献类型：
--
作者：
Hilliard ME;Sparling KM;Hitchcock J;Oser TK;Hood KK
糖尿病的自我管理是复杂且要求较高的，孤立和倦怠是常见的经历。互联网为糖尿病患者提供了相互联系以应对这些挑战的机会。本文的目的是向读者介绍糖尿病在线社区 (DOC) 参与者互动的平台，讨论与糖尿病相关的在线活动相关的原因和风险，并回顾与参与 DOC 对糖尿病结局的潜在影响相关的研究。回顾了与糖尿病在线活动相关的研究和在线内容，并使用 DOC 写作摘录来说明关键主题。为糖尿病患者、家庭、医疗保健提供者和行业有意义地参与 DOC 活动提供了指南。围绕 DOC 参与的常见主题包括同行支持、宣传、自我表达、寻求和共享糖尿病信息、改进糖尿病数据管理方法和幽默。潜在风险包括获取错误信息和对个人隐私的威胁，尽管有关此类活动造成的负面结果的数据有限。同样，关于 DOC 参与对血糖结果影响的数据也很少，但初步研究表明，DOC 对情绪体验、对糖尿病的态度以及参与糖尿病管理行为有积极影响。 DOC 参与者、活动和平台的范围正在迅速扩大。互联网为加强糖尿病患者、其家人、医疗保健提供者、医疗保健行业、政策制定者和公众之间的沟通和支持提供了机会。需要研究调查 DOC 参与对自我管理、生活质量和血糖控制的影响，并设计和评估策略以最大限度地发挥其积极影响。
Diabetes self-management is complex and demanding, and isolation and burnout are common experiences. The Internet provides opportunities for people with diabetes to connect with one another to address these challenges. The aims of this paper are to introduce readers to the platforms on which Diabetes Online Community (DOC) participants interact, to discuss reasons for and risks associated with diabetes-related online activity, and to review research related to the potential impact of DOC participation on diabetes outcomes. Research and online content related to diabetes online activity is reviewed, and DOC writing excerpts are used to illustrate key themes. Guidelines for meaningful participation in DOC activities for people with diabetes, families, health care providers, and industry are provided. Common themes around DOC participation include peer support, advocacy, self-expression, seeking and sharing diabetes information, improving approaches to diabetes data management, and humor. Potential risks include access to misinformation and threats to individuals’ privacy, though there are limited data on negative outcomes resulting from such activities. Likewise, few data are available regarding the impact of DOC involvement on glycemic outcomes, but initial research suggests a positive impact on emotional experiences, attitudes toward diabetes, and engagement in diabetes management behaviors. The range of DOC participants, activities, and platforms is growing rapidly. The Internet provides opportunities to strengthen communication and support among individuals with diabetes, their families, health care providers, the health care industry, policy makers, and the general public. Research is needed to investigate the impact of DOC participation on self-management, quality of life, and glycemic control, and to design and evaluate strategies to maximize its positive impact.