Korean Sibling Caregivers of Individuals Diagnosed with Schizophrenia.
Korean Sibling Caregivers of Individuals Diagnosed with Schizophrenia.
复制标题
韩国兄弟姐妹的护理人员，被诊断出患有精神分裂症的人。
DOI：
10.9741/23736658.1066
复制
发表时间：
2017
期刊：
影响因子：
--
通讯作者：
Lee KJ
中科院分区：
文献类型：
--
作者：
Park M;Lee KJ
精神分裂症患者的家庭团聚是家庭团聚的重要来源。不幸的是，有限的信息是关于兄弟姐妹照顾者，因为现有的研究集中在其他家庭关系，如父母，配偶和子女。为了填补知识的空白，本研究的目的是描述韩国同胞照顾者的经验与个人诊断为精神分裂症。在Colaizzi的描述现象学方法的指导下，我们对8名兄弟姐妹（1）被诊断为精神分裂症和（2）在住院精神科住院的人进行了深入的，半结构化的面对面访谈。我们发现了六个关键主题：悲伤，倦怠，羞耻，生活中的不同观点，接受和责任。我们将这些主题分为三类：痛苦、希望、责任和义务。精神分裂症患者的兄弟姐妹照顾者经历了几种情绪的混合。参与者爱他们患有精神分裂症的兄弟或姐妹，但同时他们感到羞耻和恐惧。虽然他们背负着照顾孩子的责任，但他们仍然忠于患有精神分裂症的兄弟姐妹，继续帮助他们的兄弟姐妹充分发挥潜力。虽然参与者对精神分裂症的症状感到困惑，但他们致力于了解更多关于这种疾病的知识。因为我们在韩国进行了这项研究，这项研究的结果可能是韩国文化所独有的。需要进一步的研究来比较和对比不同文化群体之间兄弟姐妹照顾者经验的细微差异。
Siblings of individuals diagnosed with schizophrenia are an important source of family caregiving. Unfortunately, limited information is available about sibling caregivers because existing studies have focused on other family relationships such as parents, spouses, and children. To fill the knowledge gap, the purpose of this study is to describe Korean sibling caregivers’ experience with individuals diagnosed with schizophrenia. Guided by Colaizzi’s descriptive phenomenological methodology, we conducted in-depth, semi-structured, face-to-face interviews with eight individuals who have a sibling (1) diagnosed with schizophrenia and (2) hospitalized in an inpatient psychiatric unit. We discerned six key themes: sorrow, burnout, shame, different perspectives in life, acceptance, and responsibility. We categorized these themes into three groups: suffering, hope, and responsibility and obligation. Sibling caregivers of individuals with schizophrenia experience a mixture of several emotions. Participants loved their brother or sister with schizophrenia, but at the same time they felt shame and fear. While they were burdened by the responsibilities of caregiving, they remained loyal to their sibling with schizophrenia, continuing to help their siblings reach their full potential. Although participants were confused about the symptoms of schizophrenia, they were committed to learning more about the illness. Because we conducted the current study in Korea, the findings of this study may be unique to Korea culture. Further studies are needed to compare and contrast nuanced differences in sibling caregivers’ experience among different cultural groups.