A Qualitative Assessment of Primary Care Physicians' Perceptions about the Ethical and Social Implications of Offering Genetic Testing
A Qualitative Assessment of Primary Care Physicians' Perceptions about the Ethical and Social Implications of Offering Genetic Testing
复制标题
初级保健医生对提供基因检测的伦理和社会影响的看法的定性评估
DOI：
10.1177/104973239500500107
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发表时间：
1995
影响因子：
3.2
通讯作者：
N. Holtzman
中科院分区：
文献类型：
--
作者：
G. Geller;N. Holtzman
由于新的基因检测被纳入初级保健的可能性越来越大，我们调查了初级保健医生提供此类检测的准备情况。作为对医生遗传学知识和态度的全国性调查的后续行动，我们进行了五个焦点小组，共有来自5个专科和4个州的39名调查受访者。半结构化问题被用来产生和指导关于参与者对以下问题的看法的讨论：(A)关于基因决策的伦理义务和(B)广泛基因测试的障碍。这篇文章描述了这些看法。与会者认为，遗传咨询中完全公开和非指导性的目标在初级保健中既不可能实现，也不可取。性别差异始终如一，据报道，女性医生在做出决定时比男性更愿意听从患者的意见。参与者似乎意识到了基因测试的成本，以及向保险公司披露机密基因信息给患者带来的社会风险。研究结果对初级保健提供者的培训有一定的指导意义。
Due to the increasing likelihood that new genetic tests will be incorporated into primary care, we investigated the preparedness of primary care physicians to offer such tests. As a follow-up to a national survey of physicians' knowledge and attitudes regarding genetics, we conducted five focus groups with a total of 39 survey respondents from 5 specialties and 4 states. Semi-structured questions were used to generate and guide discussion about participants' perceptions of (a) ethical obligations regarding genetic decision making and (b) barriers to widespread genetic testing. This article describes those perceptions. Participants believed that the goals of full disclosure and non-directiveness in genetic counseling were neither possible to achieve nor desirable in primary care. There were consistent gender differences, with female physicians reportedly deferring to patients in decision making more often than males. Participants seemed aware of the costs of genetic tests and the social risks to patients of disclosing confidential genetic information to insurance companies. Results have implications for the training of primary care providers.
让消费者参与囊性纤维化携带者筛查教育计划的制定。
影响因子：
9.8
作者：
Myers,MF;Bernhardt,BA;Tambor,ES;Holtzman,NA
通讯作者：
Holtzman,NA
将遗传学纳入初级保健实践。
DOI：
10.1001/archfami.2.11.1119
发表时间：
1993
期刊：
Archives of family medicine
影响因子：
--
作者：
Geller,G;Tambor,ES;Chase,GA;Hofman,KJ;Faden,RR;Holtzman,NA
通讯作者：
Holtzman,NA